Tag Archives: behavior

Autism: What Would You Change?

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As a parent of a child with Autism, I can certainly think of some of my child’s struggles or issues that I would love to be resolved. But I never really stopped to think… is this what my child wants?

We had an exciting weekend of “firsts” that opened my eyes in more ways than one.

This past weekend brought an amazing opportunity to attend the Canine Companions for Independence graduation and puppy matriculation ceremony… at Sea World! It was our first time there, my son’s first ride on a “big boy” roller coaster (and boy what a scary first coaster – he rode Manta!), my daughter’s first experience with Dramamine and extreme car sickness (poor bubbelah!), the first long car trip with an old friend that’s never been in a car with children for that long, and the first time I asked my son directly how he felt about having Autism.

The conversation looked like this:

“Mom? When I get older will I still have Autism inside of me?” (it’s great how he knows he is not his diagnosis)

“I’m not really sure, sweetie – no one knows what the future holds. But I was wondering, what do you like about having Autism?”

“Everything!”

“That’s awesome! How about what you don’t like? What’s really hard for you?”

“Nothing!”

“Nothing at all? Not hearing loud noises or having your body hurt sometimes?”

“Nope!”

How could this be? What about all the times we’ve gotten kicked out of public places? What about all his sensory issues? What about the screaming and crashing and spinning? It made me think: this is his norm. He doesn’t know life any other way. Could I be the one that struggles and has issues with his Autism? I was certainly frustrated when we were face to face with a magnificent polar bear and all he could see and talk about was that the child next to him had the coveted 3DS!

Could my perception of his problems really be that his behavior is not fitting into a preconceived

My little Wednesday Addams

image I’m holding for him? Do I assume he needs help sometimes when he’s just fine?

I’m not saying he doesn’t need support or that this road is easy for any of us, don’t misunderstand. In fact, I’m quite certain Justin’s sister was secretly hoping the roller coaster would shake the Autism right out of him :) But I like to question my limiting beliefs and viewpoints from time to time to see if there are any that are no longer serving me. These questions certainly helped me take a closer look at acceptance.

As we were leaving the pool following our little chat, Justin looked up and exclaimed, “Mom! It’s a beautiful nine-tenths moon out tonight!”

And I realized then that maybe he was right. I would not change a thing about him either, Autism or not.

Regression or Progression?

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I recently did my mid-integration checklist and interview for Justin’s Listening Training. As he is getting ready for his next intensive, I wanted to share some amazing gains I observed – new behaviors that I attribute to his first round of EnListen® and additional supports from home, including:

  • Introduction of Chewelry to redirect chewing (I’ll be dedicating an entire blog post to this great product shortly!!)
  • Addition of digestive enzymes, probiotics, and Omega Fatty Acid oil to his diet
  • Increased yoga and fitness routines after school

Understand that every child is different and may or may not show the same gains or at the same rate, especially after only the first intensive. These are things that improved in my child:

  • He now understands and carries out multi-step instructions (e.g., “Put on your socks, brush your teeth, and meet me in the kitchen.”)
  • Bathroom experience: his body now signals that he has to go – no more accidents (thank you!); it is an easier experience – 15 minutes in the bathroom instead of 45!
  • He is aware of possible consequences before proprioceptive crashing – Justin will now run up to things and stop and think first about whether or not it might be a good idea. He redirects himself for the first time.
  • Empathy, remorse – he consciously apologizes after accidentally hurting someone and doesn’t repeat action!
  • Fine motor improvement – he is better able to dress himself; he even wore jeans for the first time and buttoned them with no assistance!
  • Initiating bedtime on his own – he’s getting tired earlier in the evenings, and bedtime is no longer a long and drawn out process (except when he’s being a typical kid!)
  • Aware of why he has certain behaviors – when asked why he is displaying a certain behavior he is able to provide a logical answer rather than tuning out or shrugging it off
  • Report card improvement
  • Little to no spinning – much less stimming (excluding the return of recent verbal outbursts)
  • Realizing where he is in space – there is much less holding the walls when walking and chair tipping when sitting
  • Coordination, balance improvement – squatting, skipping, hurdles and obstacle courses, jumping improvement
  • Tactile gains – introduction of new clothing materials that previously were not tolerated
  • Initiating affection – this is a biggie! He is equating more with people and less with things.
  • Showing more independent thought and less echolalia (and much less regurgitated TV speak!) when asked questions or engaged in a conversation

Less than desirable changes noticed:

  • Expressing more frustration – this is due to experiencing certain feelings for the first time. Listening Training has begun the process of allowing him to be receptive to and in touch with his emotions. Justin will need to now learn how process those appropriately.
  • More meltdowns
  • The return of noises, verbal outbursts and personal space issues
  • Less motivation to complete schoolwork

Although this may appear to be a regression in behavior, I realize that Justin is experiencing a reorganization of how he sees the world and processes information. It’s going to take time for these changes to be integrated into daily practice. I have to dig a little deeper. Some of these behaviors are not necessarily a regression, rather familiar ways of coping with new feelings and experiences.

He is also reflecting his new feelings of frustration through verbal stimming and needs to learn new and appropriate ways of expressing them.

The next intensive will continue to address sound sensitivity as well as introduce organizational skills and theory of mind.

It is easy to focus on the behaviors we don’t want from our child when we see them, and immediately assume things are headed south once again. I don’t know about you, but raising a child with Autism is a roller coaster ride full of gains and regressions. It’s part of the process and I wouldn’t have it any other way.

Looking at this progress now on paper, he truly has made some incredible gains. It is imperative that the school and I continue to support him with reward systems, redirection, and behavior alternatives as he learns to integrate information in a new way.

Our Listening Training Experience So Far

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Listening Training? Huh? Is that some new form of obedience school for children?

No, silly! It’s an awesome auditory processing tool that I decided I wanted my son to experience.

From EnListen®:

Listening is the primary foundation for competency in speaking, reading, writing and social interaction. There is a difference between hearing and listening. Hearing is the passive reception of sound, while listening is the active acknowledgment and organization of sound. Listening is the interpretation of sounds in the brain. Individuals with autism and other learning disabilities can have significant listening disabilities.

The process began with an extensive questionnaire and interview to assess Justin’s history, strengths and deficits, sensory issues, diet, behaviors, and more. From that and the desired skill set indicator (specific, measurable goals), a listening program was custom-engineered and shipped to us for his first intensive.

This intensive, two-hour sessions per day for fifteen days, consisted of low-frequency music files and narrated stories. He listened in special bone and air conduction headphones to sounds with different filtering, gating and delays sent separately to the right and left ear to wake up the brain and stimulate his vagus nerve.

Low frequency training addresses issues with basic body functions, including fine motor skills, toileting, balance, appetite, sleep, spinning, and the need to crash into things (sensory-seeking proprioceptive behavior). The vagus nerve connects the brain to the body’s major organs, delivering vital messages via the parasympathetic nervous system.

Our Experience with Listening Time

I thought it would take an Act of Congress to get my child to sit still and listen to ANYTHING for two hours. Knowing that he could engage in conversation, do homework, draw, or sleep during Listening Time helped my willingness to try it :)

He LOVED this time. Every day there was a new experience that he looked forward to; each session alternated between music and narrated stories. But this isn’t just “music therapy”, the files are engineered to delay and repeat in specific ways that wake up the brain and “rewire” neural pathways! By day two, he actually fell asleep during Listening Time. YES! (it works whether the child is awake or asleep)

It was made very clear to me that this is a long-term process, not a magic bullet or overnight solution to anything. Each intensive consists of roughly two weeks of Listening Time and a four-to-six week “integration” period before the next one.

The Noticeable Changes

Each child is different, and I was also prepared to see no real gains within the first intensive, which was to be expected. In fact, there was a strong possibility of seeing some regression, or behaviors getting worse before they got better. We had a mixed bag of experiences, all positive in regard to the big picture.

I first noticed Justin expressing frustration at small things quite a bit. He had a few more tantrums and meltdowns than I was prepared for. However, I was able to take a step back and realize that he was feeling things for the first time and had to learn how to react and respond to these new feelings. This was good!

He started falling asleep to Listening Time, and was relaxed and in bed by 9:30 several nights in a row! You don’t understand, this is a child that even with a Melatonin pill in his system would be-bop around like a whirling dervish until at least midnight. This was HUGE. It also meant we started consecutively making it to school on time for a change!

Other amazing observations include Justin being able to do his homework in his own handwriting and having an easier time in the bathroom; his typical 45-minute potty experience began taking 15 minutes or less. Wow.

It’s been a few weeks since his first intensive and he continues to show new behaviors that astound me. He recently looked at a bad grade in school and showed remorse that he did not complete the assignment. Given another chance, he was able to draw the conclusion that he could change his grade by completing it then and promptly did so. He apologizes when he unintentionally hurts me and is much less hyper. He is starting to think through responses rather than mimic phrases.

I know these things will continue to improve as I support him fully with other modalities and tools we already use, as well as clean up his diet (progress, not perfection!). I love being able to ease some of his struggles without attempting to change who he is.

The next intensive will address planning and organization, language, multi-step instructions, magnitude, expression, and more, so we’re VERY EXCITED about that!

I will be releasing a video and free report that goes into more detail about EnListen®… stay tuned as I share with you our journey with Listening Training!

And uh…thanks for listening.

Sorry… I had to :)

What You Think About You Bring About

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How often do we find ourselves dreading an event, visit, or simple errand with our child? We look at past behaviors or incidents and expect the worst, based on what we experienced previously. We may even go so far as to picture the meltdown occurring and already start feeling frustrated and frazzled by the anticipation of it.

When we do this, we emit a certain frequency and our child picks up on it. Everything we think, say, and feel produces some kind of effect on our children.

How about trying an experiment? I’ve done this before with phenomenal results! Ready?

Expect the best from your child.

Not perfectionism, not nit-picking… just expect great behavior. Visualize it. Focus on what you WANT to happen and picture it happening that way. You might be very surprised at what unfolds!

I discovered this powerful shift some time ago, yet I often and easily forget the impact of such a simple adjustment. I had a great reminder today while reading a fantastic book: Bob Lancer’s Parenting With Love… Without Anger or Stress. Here is a paragraph that really resonated with me:

Praising or Thanking in Advance

When you want your child to do something, try praising or thanking her for doing it in advance. This tactic exhibits an uncanny power to bring out desirable behavior that has not yet happened. For instance, to encourage him to pick up after himself, try sincerely praising him for picking up after himself and genuinely thanking him for the contribution before he has done so. To encourage your child to play nicely with others at the playground, right before you launch her into activity you might say, “I want to thank you very much for playing so nicely with the other children at the playground today.”

Ironically, I found this to work with my To Do lists as well! For a whole week I created “Done” lists in lieu of “To Do” lists and I was so much more productive! They would read, “Went to bank, completed freelance project, did laundry, balanced checkbook,” etc. Guess what – I doubled my accomplishments that week!

What do you think? Do you have anything to lose by expecting your child to flourish and shine versus waiting for the meltdown? Thoughts are free. They can be changed and controlled with practice. Try it and let me know your results on my Facebook or Twitter page, or by commenting below!

Braving the Public… Meltdowns and “The Look”

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I posted a question on Twitter and Facebook last week that stirred quite a few comments! The question was:

Parents: how many times have you gotten “the look” in public places… as if people were saying “Why can’t you control your child?”

The myriad responses I received ranged from “It is so stressful, we don’t even bother anymore” to “I don’t even notice because I don’t care what people think!”.  It was great! You know what? I can relate to every single bit of feedback I received. I have been in all of those places emotionally and even gone so far as to second-guess or blame myself and my parenting skills along the way.

No one said this job was easy. To quote a dear friend of mine, “Parenting is not for weenies.”

I can’t count how many times I’ve had to rapidly exit a grocery store, leaving a full cart, because my child escaped and was running up and down the aisles, screaming and crashing into endcaps. I can’t tell you how many times we spent $70 at the movies only to be kicked out of the theatre before the previews were even over. I can’t recall how many times we had to leave a restaurant, paying for food that never came because of meltdowns. And don’t get me started on how I know the response time of Fire Station 5 so well ;)

I have experienced parents tell me I need to spank or beat (!) my child, I have gotten countless dirty looks from others in public places, I have been told by security officers that I need to “reel in my kid”, and I have been called a bad mother more times than I can remember. It’s not fun. I don’t even want to get into airplane follies!

As a single parent, I don’t have the luxury of another adult when out in public to take my son outside for a sensory break, put him in a time out, or to leave him with at home so I can do the shopping alone. What I also didn’t have until the last few years, though, was knowledge and understanding of Sensory Processing Disorder, a list of key things that set my son off, and tools to help me make the right decisions about taking him out.

I know we can all share horror stories. I’ve probably stifled and suppressed most of mine :) BUT I thought it would be helpful for me to share what we do RIGHT now. Meltdowns these days are minimal, if not completely gone.

Know when the odds are stacked against you. Is it close to nap time? Has your child been stuck inside with no exercise? Did he just have a big, sugary snack? Or is he really hungry? Conversely, are YOU exhausted and sleep-deprived? Squeezing things into your schedule and feeling pressed for time? These are NOT good times to take your child with Autism to the store, restaurant, bank, or any other errands. It may be inconvenient, but it is worth it to wait until all the odds are in your favor so you can handle any situation from a place of calm and grounded peace. When you can respond, not react, it changes everything.

Avoid busy times. Try to go to your favorite places when they are not too crowded. So what if your schedule is different than the rest of the world’s? The extra quiet atmosphere may be totally worth it.

Understand what your child experiences. I used to just see bad behavior. Then I would try to reason with it, yell, lose my patience, bargain with it… yes, these were really effective :) The truth of the  matter is, your child may be under assault by her senses. If you can stand a little bit of bad language, this is a GREAT video to illustrate a meltdown. I love it. Sensory Overload Simulation

You can also read one of my earlier articles, Why Does My Autistic Child Scream?! which helps explain what’s going on neurologically.

Physical exercise first. Taking 5 extra minutes before going out to toss a sandbell with your child, run a quick relay race, do some animal crawls, or just run in place can change their entire mood and energy level for your outing. Fitness creates focus, provides an energy release, and gives your child a nice self-esteem boost along the way!

Anticipate and arm yourself with supports. Bring things like noise-blocking headphones, supermarket bingo, things to draw with, snacks, or even video games if you deem them appropriate. Know where exits are as well as a quiet place to go for a five-minute sensory break if needed. Illustrate clear consequences for misbehavior prior to entering your destination, but also make it clear that breaks and time outs for his body are not the same as being in trouble! It also couldn’t hurt to have a plan B.

Look for flags. You know what it looks like when your child first starts to get overloaded. Don’t wait until the situation spins out of control before addressing it. If possible, give your child choices and encourage her to make the right ones for her. I can now ask my son, “Are you screaming for fun, or does your body hurt?” (sometimes he’s just being a boy!) I’ve had him hold up numbers to tell me where his body is on a meltdown scale – 1 being perfectly fine and 5 being totally out of control.

Compassion. It’s never easy to walk that fine line between disciplining a behavior when your child can clearly help it versus giving them support and understanding when they truly can’t. The bottom line is, we are all doing the best we can. If you think you’re frustrated by a behavior your child exhibits, imagine how he feels getting in trouble for his ears hurting or his nerve endings feeling like they’re on fire. Imagine yourself not being able to tell if you’re standing up straight or falling over, and then getting yelled at for touching the wall and not knowing why. I’m not saying all behavior is okay and should be overlooked, but seeing things through your child’s eyes (or ears, or hands) can instantly melt your frustration into compassion and assistance for your child to step into his best self!

What other public tips and tools work for you? What attitudes have you shifted that changed your experience? I’d love to hear about them!

What’s So Familiar About Cheese?

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Image from dvdverdict.com

I’m going to take a short break this week from the scientific philosophies, the tips and tools, the family stories, and the therapy program discussions and simply share an amusing correlation I made about Autism and a beloved, lesser-known cartoon character. Please note that by no means am I undermining, making fun of, or minimizing anything about my child or any of the brilliant angels on the Autism Spectrum. This is just something I found entertaining and a wee bit insightful about perspective.

My children used to religiously watch Cartoon Network’s “Foster’s Home for Imaginary Friends.” This cute and creative show is about imaginary friends being left to fend for themselves after the children that created them outgrew them and the elderly woman that founded a home for them to be re-adopted one day.

Somewhat mid-season, a character was introduced named Cheese. Wikipedia describes him as “a simple, pale-yellow-colored friend who debuted in “Mac Daddy”. He appears to be somewhat madcap and dim-witted, often saying incoherent or non-sequitur phrases, and breaking into sudden bouts of screaming when frightened or when he doesn’t get his way. Cheese likes goldfish crackers, cereal, juice, chocolate milk (although he is lactose-intolerant), and so on..”

Here are some other things I noted about Cheese:

  • He is never actually mischievous, he just does things in the moment that please him
  • The other characters see him as annoying to be around
  • He is unable to understand anyone else’s viewpoint or perception
  • He tries to do things himself and gets frustrated when he can’t
  • He tries to fit in with the other friends but is very socially awkward
  • He is addicted to cereal and milk, though his body can’t tolerate them (gluten and casein!)
  • He is perceived as “slow” yet he is actually quite brilliant, especially in the episode where the Headmaster punched in a random code on the new alarm system and locked everyone out of the house. Cheese actually remembered the entire (ridiculously long) sequence by tone and could repeat it verbatim; however, he would only agree to help if they made a game out of it and EVERYONE played along.
  • He repeats phrases and gets “stuck” on one or two topics of choice
  • He is a “space invader”: he often crashes into Bloo while playing or follows him around within an inch or two of him
  • He has no regard for danger and needs to be watched carefully
  • He is prone to wandering, and even took a bus through town by himself because of an innocent, unexplained thought he was compelled to follow
  • He is very loud, but he can’t tell that it’s not a normal volume
  • Some typical sensory experiences that other kids would enjoy frighten or bother him

By now, I’m sure you’re starting to see where I’m going with this :)

Maybe some viewers initially see Cheese as “that annoying kid with behavior issues who lacks discipline from his creator” (sound familiar?). I see this character as the quintessential snapshot of a high-functioning Autistic child. In fact, he’s a lot like my son. A lot.

His recurring appearances sprinkled throughout the show illustrate a journey with the other characters that really hits home for me. It’s a journey that goes from avoidance and rejection to an eventual understanding of him.  Ultimately the characters move into compassion and acceptance of Cheese into their community… and even offer their friendship.

Whether that was the creator’s intention or not, that’s my takeaway! Bravo, Craig McCracken.

Here are a couple of short videos to enjoy if you’re not familiar with the character!

Tribute to Cheese

Cheese Alarm Code

Why Emergency Responder Education Part II – Behaviors

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Yesterday I participated in a beautiful 9/11 memorial service and emergency preparedness festival. I am still brought to tears when the events of that horrific day are described by anyone, especially those who serve in public safety. I am honored to be a part of a huge calling to encourage citizens to get involved and help their families, neighbors, and community be prepared for disasters of all kinds. To learn more about how you can be involved in your community, go to the Citizen Corps website.

Common behaviors of children with Autism and how to handle them

As promised, here is part two of why I am passionate about training and educating Emergency Responders about Autism. Here is a snapshot of behaviors that are highly likely to be misinterpreted by police officers, EMTs, or firefighters responding to an emergency call:

Self-stimulatory (stimming)

  • Hand flapping
  • Finger play
  • Head tapping
  • Spinning
  • Transfixing on spinning or moving objects

Unless the child is injuring himself or others, self-stimulatory behaviors should not be stopped. This is a comfort for the child.

Self-injurious

  • Head banging
  • Biting self
  • Scratching
  • Eye gouging

This behavior should be stopped immediately.

Aggressive behavior is not intentional - handle with care

  • Head butting
  • Biting
  • Punching
  • Crashing into or pushing others

Aggressive behavior is usually caused by over-stimulation, sensory-seeking, fear, pain, surprise, or lack of communication.  Remember this child does not mean to hurt you. Restrain if needed, as calmly and controlled as possible.

Insensitivity to pain

  • May be unaware of pain
  • May under-react: major physical trauma may go unnoticed
  • May over-react: minor scrapes and cuts could be perceived as major

Check thoroughly for injuries; do not rely on communication or reaction from the child.

Aversion to touch

  • Light touches (hand on shoulder, back rubbing) may be painful

Although they may crave deep compression and tight squeezes, light touch is often over-magnified and can cause pain and discomfort. Do not approach the child from behind if possible; children with Autism do not like surprises.

Avoiding eye contact

  • May look at you through peripheral glance
  • May look at you through an object or spread fingers

Do not mistake lack of eye contact for suspicion of guilt, avoidance, lack of respect, or belligerence.  Try to get eye contact if you can, but do not force it.

Lack of response

  • May only respond to visual cues

Emergency responders should consider carrying sets of visual communication cards, or familiarizing themselves with basic sign language.

Repetitive motion

  • May repeatedly fidget with an item
  • May fixate on spinning or lighted objects
  • May appear to be in a trance

Do not mistake for drug use, mental illness, or lack of respect for authority.

Extreme hyperactivity or inactivity

  • Prone to running or bolting away suddenly

    Children with Autism are prone to running away - especially if frightened or confused

  • May rapidly pace back and forth
  • May appear out of control (like the Tasmanian Devil!)
  • May go limp at touch or fold into self

Redirection is the best way to diffuse hyperactivity or passivity. Try asking what the child’s favorite show, game, or movie is.  Asking mathematical questions or giving the child a “job” to will reel in their focus.

Inappropriate emotional response

  • May laugh or cry for no reason
  • May laugh at a very serious situation, or in response to feeling or causing pain
  • May show extreme distress over minor incidents

This is very hard for us to understand. Laughter in response to a serious question or accusation does not imply guilt or disrespect. It is simply a defense mechanism for the child.

Echoing speech or movement

  • May repeat everything you say
  • May mimic your tone and gestures
  • May speak in robotic tone

Do not mistake this for “being a wise guy”, or lack of respect.

Non-verbal and non-responsive to verbal cues

  • Limited or no speech
  • May appear deaf
  • May communicate with sign language, by pointing, or using picture cards

Do not mistake for lack of interest or ignorance. Try to use common gestures to get through to the child. Be patient!

Attachment

  • May hold unusual items
  • May be extremely agitated or distressed if item cannot be located

While seeming unimportant or silly to us, comfort items are critically important to children with Autism. It may be a rock, a paper clip, fabric, shoelace, or anything. Do not take away the item from the child. Try to find the item if the child loses it.

Need for routine and order

  • Obsessed about routines
  • Literal about things like time and location (“It’s not 8:30, it’s 8:28!”)
  • May repeatedly seek places or activities from the child’s normal routine

Children with Autism look to bring order to a world that’s out of order to them. Noise, lights, smells, and other sensory challenges are coming at them all the time. This is their norm.

Oblivious to others’ emotions

  • Typically do not understand facial expressions
  • Will not understand sarcasm, idioms, exaggerations, or jokes
  • May not understand they are a victim of a crime
  • May be hard to diffuse situation with normal socialization techniques (e.g., “How would YOU feel if…”)

Don’t assume that these children “should know better”, or that a simple unapproving look will get through to them. They rarely know what they did wrong and need it explained in a way they understand.

Children may respond to loud or confusing noises by screaming to drown it out

Inappropriate response to noise

  • Hyper sensitive: May cover ears with hands or try to break object that is causing discomfort
  • Hypo sensitive: May appear deaf or not respond to verbal commands

Each child on the Spectrum presents different variations of sensory issues – no two are alike! They can even be hyper and hypo sensitive to the same thing!

No fear of danger

  • May run into traffic
  • May bolt suddenly into the street or a hazardous environment
  • May willingly go with strangers
  • Will not recognize dangerous situations
  • May not understand fire, heat, sharp objects, or other hazardous items

While often possessing extraordinary academic abilities, many children with Autism do not recognize danger, exhibit no fear, are prone to wandering, and miss basic cause and effect concepts (“If I touch this, I will get burned”). Never leave unsupervised at the scene of an accident, fire, disaster, or crime.

A Valiant Effort + Failure = Great New Programs

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So I passed the Firefighter written exam with flying colors – very exciting!  I come from a family of firefighters, paramedics, and police officers, and this opportunity made me light up with passion.  I helped start our county’s Citizen Volunteer programs with Fire Rescue four years ago and have been chomping at the bit ever since to get on board.

I then mentally and physically prepared for the Physical Ability Test (PAT). At 39 years young, 5’2″, and <110 lbs, I knew it was a stretch for me to pass this test but I was ready. I’ve been working out intensely six days a week for over three years. Oh, I knew it would be hard… but I honestly thought I had it in the bag.

I did not pass the PAT. You know what? I gave it my all. I didn’t walk away, didn’t give up, and ran the course until I had nothing left in me. I tried! I am so grateful for the chance to go for it.

Not to play the classic “Fox and the Grapes” theme, but here are some great reasons why I’m a bit relieved to have this behind me. These are not insurmountable challenges that I couldn’t have found solutions for with some crafty brainstorming, but nonetheless I am looking at realistic facts:

I am a single mom with a special needs child. 24-hour shifts would require very creative solutions! Childcare, school special events, and holidays all had potential to fall on my shifts. And they would! Also, who would the school call for a sick child? Could I leave the fireground to pick up a child having a sensory meltdown? I don’t think so!

Serving the Autism Community. The academy takes 100% of your time, energy, efforts, and dedication, as it should. Yet I recognize a great need in the Autism community for tools and support that simply aren’t available right now. I am committed to using my gifts in the highest way possible.

Children on the Spectrum Have Trouble Moving

  • There is a marked higher instance of gross motor deficits in children with Autism than their neurotypical peers
  • Gross motor deficits can include abnormal gait pattern, hip flexibility, spatial awareness, and trunk stability
  • These issues DO NOT SELF-CORRECT in time
  • Self-esteem suffers; they cannot perform many movements, cannot understand what’s expected of them, and in turn become even more socially awkward
  • Organized sports do not set the foundation for long-term skills and overcoming movement deficits
  • Many schools have cut or don’t regularly offer PE!
  • It’s been proven that children (and adults!) perform better on tests and cognitive functioning after they’ve moved around

The Fitness 4 Autism Program

  • I provide custom profile assessments to determine the quality of movement pattern and any deficits or exceptions that may be relevant
  • Pushing, pulling, squatting, and rotating movements done together will directly benefit physical, adaptive, and cognitive abilities
  • Working with your child and fitness boosts confidence, independence, and self-esteem and teaches goal setting
  • No expensive, large equipment needed! I come to you.
  • These movements taught also benefit not just sensory and gross motor skills, but fine motor skills as well
  • Speech targets, communication, and behavioral targets can also be incorporated into the program
  • Sharing this program with your child will also benefit the entire family – it sets everyone up for long-term health and fitness

Special Needs Training for Emergency Responders

With the staggering number of children being born on the Autism spectrum, one sector that absolutely needs to understand how these children process information and respond to situations is public safety. First and emergency responders are not trained to recognize and handle the unique physical and behavioral symptoms of Autistic patients or victims, which are likely to be exacerbated by a crisis or injury.

Do you think an Emergency Responder would know how to handle these behaviors?

  • Difficulty understanding language or gestures
  • Inability to follow multiple commands
  • Limited or no speech, or repetitive phrases only
  • Avoids eye contact
  • Spinning, rocking, flapping arms, hitting self, biting self
  • Inappropriate laughter or response
  • May not feel cold, heat, or pain in a typical manner
  • Hyper or hypo sensitivity to light, sound, smell, touch, or taste
  • Abnormal fears or lack of fear in a dangerous situation

I provide workshops and training classes for EMS, Fire Departments, Police Departments, Red Cross, and others where needed.

Overall, I am grateful to have a taste of following one of my dreams. I’m even more grateful to be able to continue volunteering for the county, helping to prepare families for disasters and hazards and being trained and able to respond to them when they arise.

Most of all, I am ecstatic that I can use my passions and dreams (and failures!) to refocus my energy and help children and families affected by Autism.

For more information on Fitness 4 Autism Program or Training for Emergency Responders, call 404.939.6211 or email Debi@SpiritOfAutism.org

I Took the 7 Link Challenge!

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I was perusing through my favorite feeds and came across a unique content idea from ProBlogger that I just HAD to use!

The article recommends publishing a list of 7 links to posts that I (and others) have written in response to 7 categories, complete with reasons why I chose each particular post.

Here are my 7 links – I hope you enjoy them!

Your first post

Top Five Reasons I Volunteer Before I began my Autism site, I helped DeKalb County start a citizen branch of support for Fire Rescue. Along with several extraordinary team members and an amazing Captain, we formed a vision for what was known at that time as the Citizen Reserve and watched it come into fruition. It was an incredible experience. Since moving out of state, I watched Citizen Reserve change organization, duties, protocols, and eventually redefine itself. It seems to have circled back around to its original vision, and I can’t wait to be involved again in any capacity!

A post you enjoyed writing the most

… and That’s What Little Boys Are Made Of Writing to share my experiences and help others ALWAYS helps me. I can talk about being patient, kind, and empathetic with ease, but I am also a single (human!) mom that balances a LOT on my daily plate. I make mistakes. I get caught in pity parties and frustration at times. I lose my patience. This post was very therapeutic for me, as it reminded me that I don’t always have to live in an the analytical and diagnostic world of Autism. Sometimes my son is just being a boy!

A post which had a great discussion

Why Does My Autistic Child Scream?! I am always honored when someone experiencing the things I write about first hand comments on my posts or tweets. As much research and energy as I put into understanding my son, I am still an outsider when it comes to Autism and Sensory Processing Disorder. I don’t feel what he feels, or see the world quite the way he does, though I always give it my all! I was thrilled to read Jason’s thorough remarks about this post, especially when it was only my second post on the blog!

A post on someone else’s blog that you wish you’d written

Little Specks of Autism by stark. raving. mad. mommy. This post is just beautiful. I related to it so much! I especially think about all the quirky rituals I have in my daily life, from having a favorite plate that no one else can use, to my odd parking space logic, to accidentally bumping my elbow on the table and having to re-create the same volume of pain on the opposite elbow for it to feel “even”. Yep, we all have little specks of Autism alright!

Your most helpful post

Parents: Who Supports Us? This is dedicated to all of us that live with and fight for our special needs children. It’s not a job for weenies! It reminds us that our feelings are natural, however appropriate or inappropriate we are judging them to be at the time, and that support for US is vital to our children’s success.

A post with a title that you are proud of

“I’m funny how? Funny like I’m a clown, I amuse you?” This was a really fun bit to write explaining how children on the Spectrum typically do not understand sarcasm. Ironically the entire post was sprinkled with said sarcasm, as it runs rampant in my house and in my head.

Actually it’s a tie…

Are You Going to the Hardware Store for a Loaf of Bread? Another playful post that starts off with a famous scene from The Electric Company. Though quite humorous, the post really hones in on our expectations and how it’s not really fair to keep demanding things from people that they are not capable of giving.

A post that you wish more people had read

A Letter to my Son – Clearing the Past Read with tissues nearby. That is all.

Mommy’s Love Donation

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I always do my best to provide a positive, supportive and loving environment for my children. If you’ve read anything I’ve posted over the Social Web you know that I celebrate them as often as possible. Yet, at times, their self-image suffers.

My son is especially verbal about it. If I ask him to stop touching something in a store, or stop screaming in the living room, he immediately defaults to a mantra of, “I’m stupid. I’m dumb. I hate myself.” This is usually accompanied by smacking or punching himself in the head.

It kills me to see this.

I know that some of it is the effects of the turbulent trip to single parenting, and much of it is the rest of the world not quite comprehending what Sensory Integration issues he experiences with his Autism. His formative years were certainly laden with getting in trouble for “bad behavior” from teachers, daycare providers, churches, day camps, sports teams, and at times his own immediate family.

I have tried so many responses to this self-deprecating mantras, hoping to “fix” his self-esteem. (Any mother would think she has this power, ha!) From logical reasoning – pointing out his report card grades so he clearly can’t think he’s stupid – to begging him not to think that to good ol’ fashioned Italian-Jewish mom guilt (it really hurts Mommy when you say those things!)… nothing seemed to budge these repetitions. I’ve even desperately threatened mild punishments! But then he would just think it and be afraid to say it, so clearly that isn’t a solution.

We are working on some EFT sessions about this, but in the meantime I had the most profound experience one day with him. I was walking him into school as usual and I asked him to stop lifting the back of my shirt. Out came the usual, “I’m stupid. I hate myself.” Instead of my normal knee-jerk “how many times do we have to go over this” response, magical words escaped my lips!

“Justin, I know you don’t always feel like you love yourself. I’ll tell you what. I’m going to give you some of MY love to keep, because you seem to be running low right now. See, Mommy’s love never runs out and my heart always makes more, so it’s ok if I give you some.”

I proceeded to take an imaginary energy ball from my heart and handed it to him, where he promptly swallowed it like his favorite video game character, Yoshi would. I told him that anytime he was feeling stupid he could most certainly have some more of my love, because I always have some to spare just for him.

I will never forget the spring in his step I witnessed as he walked to class. Perhaps a little donation was all he needed.