autism potty training

Autism, Sensory Processing Issues and Potty Regression

This is not a fun topic for me to discuss, but I’m hoping that together we can help each other. If you are experiencing anything like this at home, regardless of your child’s age, you have my utmost empathy and understanding.

My son had delays in potty training, which is certainly not uncommon for a child with Autism and Sensory Processing Disorder. Truth be told, I have less detailed memories of those days as a single parent with chronic sleep deprivation, but we got through it.  Not that my situation has changed, but things seem a bit more manageable with older children! Or maybe I’ve just matured :)

He’s never been able to “take care of the paperwork” on his own, and that is challenging enough because I’m not here 24/7 to tend to his bottom. He has been known to hold it until I’m home from work, which creates some issues with the routine ebb and flow of daily potty experiences. Additionally, his diet is not 100% gluten free and he has never had a pleasant bathroom experience. The other part of the equation is due to his sensory processing disorder: he is unable to feel the sensation of having to go until it is absolutely the last second before an emergency. We have been working on this diligently for years with exceptional progress.

Until recently.

Justin will be 11 this month. About three months ago I noticed that he stopped going. Every few days I would find soiled boxer briefs in his closet or under his bed. Ruh-roh.

I immediately bought hygiene social stories, made it ABSOLUTELY clear that I was not mad at him and he would not be in trouble, and encouraged him to try using the bathroom on a regular schedule with visual supports.

It worked for a little while, and then things took a turn for the worse. He hadn’t gone for about a week and I made him sit down and try before I went to work one morning. When he was done I saw blood. A frightening amount of it.

Luckily, we ruled out the really scary stuff at the hospital and discovered it was due to impacting. More talks, more social stories, more diet adjustments… I thought it scared him into being more diligent with his potty experience. He has made it clear that not being able to clean himself embarrasses him, so I believed he had the capability and awareness to make certain choices regarding the bathroom.

Still he is regressing. Now he goes in his boxers and cleaning him up has become a physical issue. He is bigger than me. I am very careful to avoid attaching negative emotions to this experience and always try to be 150% supportive, but it is harrowing.

Why he is afraid to go

I believe that sensory issues are still playing a role, but there has to be other stuff going on to foster this behavior. His diet can always be improved. I’ve read that fear could stem from leaving a part of himself behind. And of course, overall it’s a long and painful experience for him.

For a child that can’t stand a speck of dirt on his hands, it bewilders me that he can sit in soiled and pungent undies with no issues. I won’t even tell you the details on how I had to sanitize his room. ACK.

Solutions

You know me, I always have to have a plan of action when faced with a challenge! We’ve luckily ruled out medical concerns and reasons. I thought about buying adult diapers, but I feel like that would make it okay for him to keep doing this. So here is what we plan to try:

  • More social stories
  • Positive reinforcement
  • An interval timer where he will try at set times to get him used to the routine again
  • Continued tweaks to his diet
  • More movement, including yoga
  • Natural stool softener, such as flaxseed oil

I will keep you posted! What about you? Have you experienced this at home with your child (no matter what age)? What worked for you? Did anything make it worse? Share your stories by commenting below!

autism and exercise

Guest Post: Autism and Exercise

Autism is a developmental disorder of the mind, but it has a profound impact on the body as well. Children with autism can have trouble with motor function, poor coordination, myoclonal jerks, abnormal gait and posture, and sometimes difficulty sitting, lying, crawling, or walking.

Autism is incredibly complex and still largely mysterious, and treatments can require a multitude of medical and behavioral interventions, from medications and educational therapies to behavioral therapies and communication therapies. But there’s another piece of the puzzle, one that can help not only with some of the physical symptoms but with behavioral problems and quality of life in general: exercise.

Why Exercise Matters in Autism

Physical activity is important for all children, regardless of their health, but it’s especially important for autistic kids. They have higher rates of obesity than other children, for one thing, and that puts them at risk for other health conditions, from diabetes to depression. And those illnesses will only further aggravate the underlying symptoms of the autism.

Physical fitness improves general motor functioning. Studies have shown that regular exercise can lead to improvements in balance, strength, agility, speed, endurance and flexibility. It also has been shown to significantly reduce negative, repetitive behaviors such as body rocking, head nodding, object tapping, and spinning. And exercise may have an effect in reducing self-injurious or aggressive behavior.

Finally, regular exercise gives autistic children some of the positive social interaction they find difficult to maintain in their daily lives. This is particularly true of children who are able to participate in team sports, but it’s also true of children who require solitude, as there still may be interaction with coaches or therapists. Above all, autistic children who exercise are able to build self esteem and self confidence that may help them manage their symptoms and communicate more easily.

Finding the Right Approach

So what’s the right exercise regimen for your autistic child? Well, that depends. It depends on your child; their symptoms and behaviors as well as strengths and deficits. Most of all, it depends on what your child enjoys!

Whether it’s team sports or one-on-one yoga, don’t rule anything out right away. Some sports, like hockey, may seem too dangerous or too involved or too social, but that doesn’t mean they are. There are hockey teams in the United States made up entirely of developmentally disabled children.

Combine Exercise, Academics and Social Skills

Whatever type of athletics you choose, do what you can to integrate it into your child’s academic and social skills studies. Follow your child’s exercise regimen or team sport with a study period, and follow that by a social skills period. Make sure the various teachers and therapists are in contact with each other. Integrating social, academic and physical activities will help minimize your child’s cognitive and sensory symptoms.

If your child is up for a team sport, either find one that has other developmentally disabled players or place him or her on a team with players a couple of years younger. A “shadow” can help bring your child onto the team socially and athletically.

Even if your child isn’t ready for a team sport, he or she can still learn some of the basics – making a goal, catching a ball, throwing into hoop. That way, if the time comes, he or she can join in a game after school or sign up for a team.

Valerie Johnston is a health and fitness writer located in East Texas. With ambitions of one day running a marathon, writing for Healthline.com ensures she keeps up-to-date on all of the latest health and fitness news.

resolutions or reboot

Resolutions or Reboot?

When my son is in his room either playing, building or watching role playing games on his laptop, I will sometimes hear frustrated screams and banging against the keyboard from behind his door. Fearing the thought of having to purchase another laptop (yes – it’s happened!) coupled with not wanting my child to dwell in stressful emotions I will usually run in and see what is causing the outbursts. It’s always the same issue: the computer is lagging!

What is the first thing I ask him when this happens? “Did you reboot?”

99% of the time a simple reboot fixes the issue he’s experiencing.

That got me thinking… in what way is my life “lagging” right now? (oh let me count the ways!)

Do I really want another list of resolutions to meet? Truth be told, all my resolutions have been on a list throughout all of 2012; some even longer! Guess what? Many weren’t accomplished. Do I honestly think that the changing of a calendar is going to make these resolutions and goals magically manifest? Really?

“We can’t solve problems by using the same kind of thinking we used when we created them.” Albert Einstein

“Insanity: doing the same thing over and over again and expecting different results.” Albert Einstein

I don’t need “resolutions”. I know what I want to achieve. I know how I want to best support my son and daughter on their journeys. But we are all lagging right now. I propose a reboot.

How do you reboot yourself?

Here’s a funny one – The Universe already gave me a head start. I have this giant running “To Do” list that I carry around with me. Which is hilarious because I always think I can accomplish sever or eight days’ worth of tasks in four hours :) Anyway, aside from the usual day-to-day minutiae I had been taking the same several “big” items and transferring them from list to list for over a year. You know, those things that really need to happen but have no due date? The items that make me feel like I’ve been punched in the gut every time I see them still on my list? Those.

Well, my list is gone. I went to do my usual “transfer” and I can’t find this sacred list anywhere. Message received.

Here are some other things you can do to facilitate a reboot:

Change your routine. Is there a new food or eating style you can incorporate into your diet? What about one vegan meal a week? Eliminating dairy? Adding an exotic fruit or vegetable that you’ve never tried before? How about a new exercise? Try some yoga, take a walk, go to the park. You can listen to a new band on CD, try meditation, or even sit on the other side of the room! Any little change to shake up the hamster wheel feeling. I know how important routines and schedules are to children on the Spectrum,  but you can make a game out of it and let them help choose your new adventure.

Take a break from electronics and social media. It’s so important for us to unplug sometimes. We don’t realize it until we actually step away. How about getting out in nature, visiting a museum, or playing some old-school games? Jacks, hopscotch, I-Spy… I’ll bet you forgot how fun they can be.

Sleep it off. Rebooting can sometimes mean we need to oversleep. My Malamutes don’t let me sleep in, but there are occasional days (once every few months) where I just collapse into bed before my children. We are torn in so many different directions these days that sometimes we need to shut down and let our bodies and brains restore balance naturally.

Go for a full system upgrade. Why not? Maybe it’s time for a new career. Maybe you want to start your own business. Or get that new car you’ve had your eye on. What about a big move? Is there a new part of town you’ve thought about moving to? A new city? State? Even country? Nothing says reboot like moving and starting over. Just make sure you’re not moving to run away from your problems – they’ll follow you!

What about you? How can you reboot, leave the lagging behind, and get a fresh perspective on your life? I’d love to hear what’s going on with you – share by commenting below or posting to the SOA Facebook page!

autism verbal stim

Some Mornings Feel Like 17 Levels of…

The other morning, before I even had a chance to hit snooze at 4:35, I woke up to this:

Click to hear (speakers DOWN!)

It proceeded for four and a half hours, until I left for work.

Trying to get out of bed, my son was standing over me making these very loud, bizarre noises.

Getting the three malamutes leashed up and ready for their morning walk, my son was trying to ride them and screamed the noises in their faces.

While I was preparing his breakfast, he would sneak up behind me and scream the noises so I jumped and spilled his food.

During my entire workout he would jump on my back, grab my leg, stand on my back while I was doing pushups, and fight with the dogs… all while making non-stop noises.

Whilst in the shower he would constantly open the curtain and scream (it echoes! Oh boy… even louder!) the noises.

Applying my makeup.

Getting dressed.

Making coffee.

Packing lunches.

Preparing the dogs’ treats.

Yes, four and a half hours. Of course, I was in rushing deadline mode, not patient parent mode, so I made the situation worse.

As I was leaving for the office, he immediately sat down and began composing beautiful original music on his DSi XL. Huh? Then he had the temerity to say to me, “Mom, it seems like you have your feathers in a bunch today.”

AAAAAHHHHHHHHHHHH!

So what was going on?

I wish I knew. I wish I had a distinct checklist or pattern that would solve for “x” (the noises).

It could have been something he ate or drank before I got up (clearly he was awake before my 4:30 alarm) that caused a reaction.

Maybe this was an extension of sensory-seeking behavior.

Maybe it was verbal stimming due to something was worrying him – a change in a pattern or schedule (he recently had some issues with visitation and his father).

Maybe he was bored.

Maybe he wanted attention.

Maybe he was just having an off day – we all have them. Children with Autism (and puberty!) may not intuitively know how to channel “bad day” energy.

What I do know is this: had I stopped for five minutes and employed one of the tools I normally pull out of my “patient parent toolbox”, I’m sure the morning would have gone differently. I’m not saying the behavior would have stopped completely, but here are some ways I could have redirected him:

  • Invited him to join me on any of the physical activities of the morning, like the dog walk or intervals (jumping jacks, jump rope, running in place, squats)
  • Taken a yoga break
  • Engaged him in a one-on-one activity that he loves (Hangman, Picto-chat, Uno)
  • Played a sensory game
  • Had a protein snack
  • Did an EFT tapping session
  • Designated a “screaming” area of the house where it’s okay to let it all out

These are all quick, simple ways to break the pattern of the morning. I, on the other hand, became stressed, got aggravated, and let the panic of being late overtake me. I got to work feeling like I wanted to carve out my intestines and strangle someone with them. Imagine how he felt, having all this energy in his body and not knowing how to get it out without getting in trouble!

Lesson learned. Sometimes we have to experience 17 levels downward before we can “level up”.

What about you? Have you seen a behavior recently that made you pull your hair out? What did you do about it? What could you have done differently? I’d love to hear your stories in the comments below or on the SOA Facebook page!

Spring Fever – Time to Get the Body Moving!

I am learning from my mistakes. Hey, that’s better than continuing a pattern for an indefinite amount of time, unwilling to look at what may or may not be working, right?

My son, being an unschooler for a little over six months, is very much out of shape. Oh, I know the reason. He spends the better part of his day programming video games (not playing them – WRITING them!). Because of his obsession and brilliance, he currently isn’t interested in joining the rest of the world.

Without turning this into an unschooling article, there is a certain degree of “deschooling” a child will go through when first realizing they are not being forced to memorize things they have no interest in. Picture having been restricted from a certain food group for years and years and suddenly you are told you can eat whatever you want WHENEVER you want – what do you think you would do? Eat all your favorite foods to excess, most likely! Then your body would realize it could have them at any time, and the pendulum would start forming a natural balance – you would find a nice rhythm to your eating. By the way, your body is way smarter than your fad diet, but that’s a post for another day!

The situation

Here’s the missing key in my house right now: my son will spend hours programming games and then get these uncontrollable bursts of energy that have no choice but to be released in the fastest and loudest way possible. He usually shapeshifts into a whirling dervish and runs the length of the house several times, screaming and hitting everything in his path. Not angrily, just energetically :)

Sure, his body is taking care of the regulation of this energy, but not in a productive way. Typically this will result in dogs or sister lashing out at him for inappropriate agitation, followed by the lowering of his self-esteem because he doesn’t understand what everyone’s so upset about.

Having done a successful Fitness 4 Autism program with him in the past, I am kind of ashamed that I let things go this direction for so long. At times I switch into survival mode, when I am balancing a ridiculous amount of things on my oversized, superwoman plate. But that’s okay, all we have is the now and here’s what I’m committing to:

The solution

Short chunks of regular movement breaks. One of my greatest motivation tools for Justin is a timer. Whenever he is resistant to any activity (tooth brushing, taking out the trash) I turn it around and make it a game. I tell him he’s not faster than me, and we have a friendly race doing whatever it is that needs to be done. So we will set a timer and perform animal crawls, star jumps, and similar short bursts of full body movements. Functional exercises for short periods of time are great for everyone, not just children on the Autism Spectrum!

Family field day. Sandbell tossing, hurdles, jumps, even sack races… there is nothing wrong with a little family competition! We’ll even get the dogs involved (Malamutes LOVE to pull things!). I am making the ribbons tomorrow – very excited!

Replace the mini trampoline. It’s been a while since our old one broke. Why have I never replaced it?  This is a good object to always have available to alleviate any short bursts that come unexpectedly.

Weekly yoga. There are so many benefits to practicing yoga, especially for Autism. We both loved doing this in the past – once again it’s funny how bad habits seem to have much easier “sticking” power than things that are good for us!

Exploring new parks. We are very fortunate to live in a county that has over 120 parks and recreation centers. Why are we sitting at home? Time to say no to some of those freelance clients that need things yesterday, turn off Law & Order (love me some Vincent D’Onofrio!), put the iPhone on airplane mode and go PLAY. We can even make a park rating document and map – why not turn it into “research”?

How does regular movement really help?

It’s been proven that children (and adults!) perform better after they’ve moved around. Regular physical activity helps your child:

  • Maintain focus for longer periods
  • Feel better about himself and his abilities
  • Put multiple commands together with cues
  • Confidently participate in new things
  • Get in better shape

Fitness boosts confidence, independence, and self-esteem, plus it teaches goal setting. Speech targets, communication, and behavioral targets can also be incorporated into your daily movement breaks. Remember, no expensive, large equipment is needed!

This is my Spring commitment to my children and myself. I set an example daily with the intense early morning workouts I do at home; however they never see me simply moving for fun, other than walking the dogs.

Join me in this Spring movement… “movement”. Remember, sharing this goal with your child will benefi­t the entire family – it sets everyone up for long-term health and fi­tness. Tell me how you plan to move more with your child by commenting below or sharing it on the SOA Facebook page! I love fresh ideas!

7 Benefits of Practicing Yoga for Autism

I recently purchased Yoga for Children with Autism Spectrum Disorders by Dion and Stacey Betts. My son was quite reluctant to try this with me (because it sounded like “therapy”). I honored his request to not be bothered with it, but what I DID do was bring the book in his room and pretend to struggle with the poses myself, finally asking in an exasperated fashion if he could help show me what I’m doing wrong. It worked! Not only did he correct my moves, he hungrily kept asking, “Are there more in the book? Can we do another one? Do you still need help, Mom?” (Yes!)

You may think yoga is only for monks on the path to enlightenment (not that there’s anything wrong with that at all), but it is truly a well-kept secret to overall health and wellness. To steal the author’s perfect description in the book’s opening:

Yoga is a practice consisting of physical postures and breathing exercises that help to unite the body and mind. Yoga originated in India many centuries ago and is gaining great popularity throughout the world. Yoga’s benefits include stress reduction, inducing calm, muscle building, flexibility, and coordination.

So these are yoga’s amazing general benefits, but what about our children on the Autism Spectrum?

Aside from medical studies illustrating yoga as in effective treatment of neurological disorders and indicating that it increases motor performance of school children, the gains immediately related to physical and emotional symptoms of Autism are surprising.

Here are the top seven I found:

My child has low muscle tone. Trunk instability and low muscle tone affect not just coordination but stamina as well. The poses improve large muscle strength, which help increase the tone of their muscles. They also help mobility, which encourages  confidence when joining peers in a physical activity.

Gross motor delay makes my child appear awkward. An odd gait and delay in gross motor skills make these children appear clumsy, often resulting in teasing and being picked last for team activities. Yoga poses help your child become aware of where their legs and feet are in relation to the rest of their body, which helps improve coordination.

What about missed milestones? It can be disheartening when your child seems to be missing out on what we consider typical activities for their age. My son cannot ride a bicycle, skateboard, and frankly he needs help with his “paperwork” after using the potty. When yoga poses are practiced consistently it allows children to feel more comfortable in their bodies, which carries over into all other aspects in their lives.

How does it help sensory issues? I’m confident we are all familiar the sensory processing issues that accompany most children on the Spectrum. Yoga practice actually soothes the nervous system, allowing energy to be released from the body. With many of these poses, a child in sensory overload will experience his system being calmed, focused, and quieted.

We need to be at home to use all our calming tools. Yoga is portable! Special breathing exercises are also virtually inconspicuous and can be practiced anywhere when the need arises. Choose a few of your child’s favorite breathing protocols and easy poses and you are now armed with a new tool to help your child in the world.

Will yoga help my child make friends? There are certainly many reasons children with ASD feel isolated from their peers; whether it’s conversational struggles, narrow focus of interest, or anxiety from pent up emotions and sensory issues, yoga will help your child become calmer and more focused. From this new place, the mind is open to learning in a much more effective way.

Don’t try to cure my child, Autism is part of who he is. Yogi philosophy places high value on individuality. Beyond the poses, students of yoga learn to accept themselves and celebrate the differences of others. Yoga is not a modality that will “cure” your child. It can, however, ease some of the struggles and help them accept their unique personality and behaviors.

This, I believe, is the ultimate goal for our children to help them step into their best selves.

SPECIAL NOTE: If you haven’t signed up for my newsletter, I encourage you to do so! This week’s newsletter reveals an entertaining story about why the police visited our house yesterday morning and the lesson I helped my child gain from the experience.

8 Ways for Your Child to Burn off Energy Indoors

Brrr! The weather’s starting to get chilly (I hear it’s actually snowing in places other than Georgia… color me jealous!). The kids are spending more time inside – where does that leave fitness and movement?

Let me tell you what happens in our house if we don’t find a way to burn off that energy: bedtime somehow gets prolonged. A whirling dervish races up and down the hallway whilst screaming in a pitch heard by dogs in the next state. My son repeatedly tries to ride the puppy. Lots of crashing into walls. Frustrated family members grow impatient.

All it takes is a few minutes a day and some creativity to radically change the misdirected energy into focused fun. Here are some ideas for indoor activity:

Invisi-ball. This is a great game for imagination and it saves fragile knickknacks to boot! I start by choosing an imaginary ball – any size – and tossing it to my son. As we catch or volley throughout the game, either of us can change the ball type at any time to keep it interesting. We throw invisible beach balls, softballs, and everything in between. It’s fun to let some hit me in the head and knock me down, miss some. and catch some impossible ones!

Animal relay. This is fun if you have a long stretch of room to travel. Each turn is performed as a different animal: crab walks, frog hops, bear crawls, etc. You can either race your child or tag team the animals and take turns.

Mirror. This is a playful exercise for coordination and motor skills. Remember to keep it simple – the idea is not to stump your child but help them achieve their goals, feel successful, and of course have fun! Stand facing your child and take turns doing different movements while your partner mirrors them. The longer you play, the faster you get! This game has lots of silly potential :)

Runaway bug. If it doesn’t creep out your child (or as I used to say when I lived in New York: “skeeve” him) pretend a giant bug just crawled up his leg. Each body part the bug travels to is the part that gets the wiggles and the only part the child can move. The game ends with free-play movement – shaking the bug off your whole body.

Yoga ball rolls. I bought a giant yoga ball with some exercise infomercial system years ago and it is probably one of the most used items in my house to this day. For me, it’s an intense addition to my bodyweight and interval training. For my daughter, it was a giant dinosaur egg when she was younger. For my son, it’s an awesome sensory experience. There is no wrong way to roll around with this versatile piece of equipment.

Obstacle Course. Indoor obstacle courses do not have to feature running around cones and climbing walls; there are many tame ways to enjoy a friendly competition inside. Stepping over items and crawling under chairs are just two ways a course can be manageable and still fun. If you have any party streamers leftover from a past celebration, be sure to tape it across a doorway for the final destination of the course. Who doesn’t like running through a finish line and tearing the ribbon?

Dyna-Band pulls. These can be used as a tug of war exercise with your child, or draped over a doorway to do some challenging yet fun pulls. My son likes the feeling of things wrapped around his neck, so I always have to be extra present and aware when we bring out the Dyna-Bands. This is not something he can play with unsupervised.

Yoga. Yoga is great for relaxation but also offers much in the way of movement. My son never wants to do yoga with me when I ask him. Yet, every single time, I’ve sat next next to him in his room and just started some poses. I show him pictures of someone doing a yoga pose and ask him how to do it, pretending I simply don’t understand. Before I know it, he not only shows me the pose and joyfully does it with me, he asks for more! Yoga is fun, as long as you adapt it to your child’s abilities.

What kinds of energy burners are popular in your house? I don’t even want to tell you that when I was a child my best friend and I used to take sleeping bags and race down her stairs in them. Shhhh… I don’t want my kids to hear. Because THAT’S got ‘Emergency Room’ written all over it ;)

My Top 10 Autism Support Tools

As you know, I’ve seen incredible progress in my son during the past five years. I am happy to report that he has never undergone any traditional therapies outside of the home; everything we have done together on this amazing journey was created from my research and personal connections made over Twitter, LinkedIn or Facebook. These connections led to expert interviews and the introduction to some really unique tools that made a huge difference in our lives. Here are my current favorites (in no set order):

Chewelry - Kid Companions is a chewable and wearable fidget that is safe, stylish and effective. It’s the perfect alternative to fidget toys and chewys and worn as “chewelry” is less-than-discreet.

This awesome product keeps my child from destroying costly toys and clothes and actually helps him focus and stay on task!
Calmer By Nature DVDs and CD – With no music or voiceovers – only the raw sounds of nature – the film helps with Stress, Anxiety, Insomnia, Sensory Problems, Alzheimer’s, Dementia, Autism, Sensory Processing Disorders, Cognitive Behavior Therapy, ADHD, and Mental Illnesses. In addition to helping Justin get relaxed at bedtime, it also:

  • Calms him before an outing he may be feeling anxious over
  • Redirects him during times of high stimulation
  • Provides him with short, 10-minute “cool down” times when he needs a sensory break
  • Gives him ideas for drawing and video creation projects
  • Starts conversations about the wildlife we see on the film

Yoga Ball - I bought my yoga ball years ago as part of my never-ending fitness research and it has been such a versatile staple in my home! From traditional use in my fitness routines to my daughter using it as a “dinosaur egg”, my son rolling around on it, and its employment as bedtime proprioceptive tool… it was the best $25 I ever spent!

Many times our evening ritual consists of “hot dog”: rolling him up in a blanket and using the yoga ball for deep compression on his back. We use different patterns as “toppings”; like circles are called onions, vertical rolling is called ketchup, etc. This is an instant calming tool that never disappoints.

Sandbells - These are our favorite fitness accessories when we work outside – we do overhead carries, throws, passes, and much more! They are safer than dumbbells and offer a sensory experience to boot!

DSi XL – Many parents would argue that video game systems are not a support tool. Here’s why I encourage my son’s use of his DSi XL: Flipnotes. He creates videos using an application that mimics old-fashioned, frame-by-frame animation. Sometimes they are 800+ pages long. He then adds music and voices to these videos and posts them in his Flipnote community, where his fellow creators rate and share them. It’s really neat to see the patience and detail that goes into the creation of these animations!

Digestive Enzymes/Probiotics – These are not a replacement for a diet free of gluten and casein (and other common culprits for food sensitivities like soy and corn!), however digestive support is essential in children on the Autism spectrum. There is a direct link between digestion and behavior. To be completely transparent, we are not on a 100% GFCF diet but we do our best! These enzymes and probiotics help step in with support where we fall short with diet alone.

EnListen® - With all the alternative, natural and creative strategies I try at home to help improve my sons symptoms and behavior deficits, the one thing I cannot do for him is change the way he processes sound! Sound Training has been such a gift and blessing in our house. While it is not a magic bullet by any means, the gains I have seen on a physical, cognitive, and adaptive level have been unmatched.

Social Media - As parents we often throw our entire being into helping those we love,  especially our children. The one thing we forget is that we need support, too! I have met some incredible people on unique but similar journeys over social media that I never would have encountered otherwise. I personally want to thank every single person that has connected with me on the social web. Your presence in my life – regardless of capacity or length of time – has made my universe a better place.

Signing Families - Louise is one of my favorite ladies on the Internet! One day we will meet in person and I bet it will be like we’ve known each other for years :) She has been teaching American Sign Language for more than 20 years to families with hearing and non-hearing children, college students, staff at public and private school systems and businesses. She also shares one of my other passions and provides materials to Emergency Responders.

Sign language has opened myriad doors for my son in regard to communication. I believe American Sign Language can give a voice to all who struggle with language for many reasons.

EFT - A little more “alternative” than some other techniques, EFT can help parents overcome limiting beliefs, fears, and frustrations, as well as deal with any grief or overwhelm that accompanies have a special needs child. I have also worked with my son directly and helped him break through a huge block he had with self esteem. It may or may not be for you, but you’ve got nothing to lose if you want to check it out!

Many times we also do EFT while listening to Jeff Gold’s Escapes… another great calming and relaxing CD of original music.

What are your favorite tools? Do you use them at home or outside of the house?

Product Review: Escapes, Music for Relaxing by Jeff Gold

I recently received a CD entitled “Escapes – Music for Relaxing” by Jeff Gold. It is described as “One hour of soothing instrumental music to uplift and revive you. As refreshing as a long walk along a perfect beach, ‘Escapes’ is the ideal tempo and rhythm for creative inspiration, massage, yoga, scenic drives or just winding down.”

This beautiful music – composed, performed and produced entirely by Jeff – is true to its word and then some. The chief reason I wanted it was to see how it might help my son relax, especially when he’s in the throes of a sensory meltdown. Ideally, when the flags pop up for an impending meltdown, it is the perfect time to see if I can head it off at the pass, so to speak!

Jeff’s compositions exceed my expectations in so many ways! His uncomplicated melodies and single instrument focus in each song (some piano, some guitar) not only help my son but actually inspire the entire family, including our six new puppies!

The number one benefit that I immediately witnessed was Justin’s focus while doing homework. Normally it takes over an hour to do about 20 minutes of actual work because of distractions, wandering, and plain old not wanting to do it. I put Escapes on softly and we zipped through all four subjects in less than 30 minutes without arguments or repeated prompting. If this were the ONLY outcome of having this CD I’d take it in a heartbeat! Everything else is icing ;)

Here are some other ways my family has enjoyed Jeff’s gifts:

  • Well, right now I’m listening to it so I can write this overdue blog post! “Smooth Sailing” is taking me on a journey, and I find that the words are starting to pour out faster with each swell of the music. I love it.
  • These days I am frequently overwhelmed with my growing To-Do list, multiple jobs, volunteer time with the Fire Department, and of course being a single mom to boot! This CD instantly takes me out of my head and into the present moment, where I need to be always. It literally takes my blood pressure down several notches along with my stress level. That’s a GOOD THING!
  • My teen daughter is able to complete more of her homeschool chapters when listening to Escapes. Of course she doesn’t realize this, but I am always watching!
  • Our new pups are now at the age (4 weeks) where they are crying for attention. A lot. All night. And all day. Did I mention I was exhausted? Anyway, their incessant whining causes Mama Dog to experience much distress, as she thinks something is wrong and tries to get them out of their contained area. The situation escalates pretty quickly. This morning I put the music next to the pen and the puppies went to sleep! Mama was able to go outside and enjoy the back deck for a while.
  • After school each day, my son and I do a rotation of Fitness 4 Autism (a fitness program I created based on Eric Chessen’s mentorship), yoga, and EFT sessions. This CD complements are sessions perfectly.
  • And let’s not forget bedtime! Parents, I KNOW you can relate to the many sleep issues that often accompany an Autism Spectrum Disorder. We love listening to Jeff’s music when doing our sensory routine before bed and during “tucking in” time to help wind down for the night.

Thank you, Jeff, for creating such inspiring and relaxing music. It continues to enhance our family’s activities daily and provides the perfect tool for Autism meltdowns, teen angst, parental overwhelm, and even puppy anxiety!

I highly recommend you go to JeffGoldMusic.com and get a copy!

Stay tuned for additional special reviews on Chewelry, a Kiboomu app for the iPhone, and two awesome eBooks from Zidlow Marx!

I do tricks already! Adopt me!

P.S. Wanna puppy?

Regression or Progression?

I recently did my mid-integration checklist and interview for Justin’s Listening Training. As he is getting ready for his next intensive, I wanted to share some amazing gains I observed – new behaviors that I attribute to his first round of EnListen® and additional supports from home, including:

  • Introduction of Chewelry to redirect chewing (I’ll be dedicating an entire blog post to this great product shortly!!)
  • Addition of digestive enzymes, probiotics, and Omega Fatty Acid oil to his diet
  • Increased yoga and fitness routines after school

Understand that every child is different and may or may not show the same gains or at the same rate, especially after only the first intensive. These are things that improved in my child:

  • He now understands and carries out multi-step instructions (e.g., “Put on your socks, brush your teeth, and meet me in the kitchen.”)
  • Bathroom experience: his body now signals that he has to go – no more accidents (thank you!); it is an easier experience – 15 minutes in the bathroom instead of 45!
  • He is aware of possible consequences before proprioceptive crashing – Justin will now run up to things and stop and think first about whether or not it might be a good idea. He redirects himself for the first time.
  • Empathy, remorse – he consciously apologizes after accidentally hurting someone and doesn’t repeat action!
  • Fine motor improvement – he is better able to dress himself; he even wore jeans for the first time and buttoned them with no assistance!
  • Initiating bedtime on his own – he’s getting tired earlier in the evenings, and bedtime is no longer a long and drawn out process (except when he’s being a typical kid!)
  • Aware of why he has certain behaviors – when asked why he is displaying a certain behavior he is able to provide a logical answer rather than tuning out or shrugging it off
  • Report card improvement
  • Little to no spinning – much less stimming (excluding the return of recent verbal outbursts)
  • Realizing where he is in space – there is much less holding the walls when walking and chair tipping when sitting
  • Coordination, balance improvement – squatting, skipping, hurdles and obstacle courses, jumping improvement
  • Tactile gains – introduction of new clothing materials that previously were not tolerated
  • Initiating affection – this is a biggie! He is equating more with people and less with things.
  • Showing more independent thought and less echolalia (and much less regurgitated TV speak!) when asked questions or engaged in a conversation

Less than desirable changes noticed:

  • Expressing more frustration – this is due to experiencing certain feelings for the first time. Listening Training has begun the process of allowing him to be receptive to and in touch with his emotions. Justin will need to now learn how process those appropriately.
  • More meltdowns
  • The return of noises, verbal outbursts and personal space issues
  • Less motivation to complete schoolwork

Although this may appear to be a regression in behavior, I realize that Justin is experiencing a reorganization of how he sees the world and processes information. It’s going to take time for these changes to be integrated into daily practice. I have to dig a little deeper. Some of these behaviors are not necessarily a regression, rather familiar ways of coping with new feelings and experiences.

He is also reflecting his new feelings of frustration through verbal stimming and needs to learn new and appropriate ways of expressing them.

The next intensive will continue to address sound sensitivity as well as introduce organizational skills and theory of mind.

It is easy to focus on the behaviors we don’t want from our child when we see them, and immediately assume things are headed south once again. I don’t know about you, but raising a child with Autism is a roller coaster ride full of gains and regressions. It’s part of the process and I wouldn’t have it any other way.

Looking at this progress now on paper, he truly has made some incredible gains. It is imperative that the school and I continue to support him with reward systems, redirection, and behavior alternatives as he learns to integrate information in a new way.