Tag Archives: celebrate

For the Mom Who…

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…has to drive her infant around at 2 in the morning because being in a moving car is the only way he will go back to sleep.

…sometimes cooks three separate meals for dinner because her picky eater will only have pizza – but the crust has to be right, it can’t be too cheesy, the pepperoni better not be the spicy kind and there can’t be too much sauce. Oh and definitely not the sauce that is too sweet or has any green stuff in it.

…on some days actually falls asleep standing in the shower.

…most likely has read “Goodnight Moon” to her child at least 6, 947 times and still does the funny voices.

…gave up grown-up music in the car for about ten years in favor of Kidz Bop, Disney, and Pokemon CDs.

…can fix her child’s toys or computer, put together a shelving unit, replace worn appliance parts, mow the lawn, and still remove splinters with the precision of a surgeon.

…wants so badly to fix everything for her children but knows she must stand by and let them have the experience on their own.

…will be there to help pick up the pieces when they don’t quite get it right the first time, and encourage them to try again.

…always makes sure the house is never completely out of any grocery item, and the lunchboxes and coffee are always ready in the morning, without exception.

…simply doesn’t have time to be sick. Ever.

…has to endure the glares of people that think she simply doesn’t spank her special needs child enough when he’s having sensory meltdowns in public.

…eats the burnt toast so everyone else can enjoy their breakfast and nothing has to be wasted.

…sometimes cries when no one’s looking.

…knows that her children are here to teach her, too.

…gets up every single day and does what needs to be done no matter what kind of mood she’s in.

…accepts that right now it’s okay that her child with Autism is 10 and still needs help showering, using the bathroom, dressing, and brushing his teeth. She performs these tasks with grace.

…celebrates every success, large or small, and takes nothing for granted.

…knows that her children love her, but sometimes wishes they would show it a little more. However, she doesn’t require it to keep her heart open.

…goes to bat for her children, unconditionally, because their success is non-negotiable.

…always encourages her children to be their unique and authentic self.

…realized early on that there’s no turning back – this is a lifetime job and it isn’t for weenies.

…still knows how to dance with confidence, even if it’s in her living room. On the coffee table.

…learned long ago that the workload will never be “even” or “fair,” and that’s okay.

…considers the simplest pleasures a big deal, because life is precious and all we really have is the now.

…knows that her children chose her before coming to this crazy, adventurous place, and she is grateful.

…remembers that shining her light and being her true self is the greatest gift she can give to her children, for it inspires them to do the same.

…simply does her best, because there is no manual for this gig!

I salute you. All of you. Single moms, married moms, “unplanned” moms, adoptive moms, older moms, teenage moms, special needs moms…we have a bond – a circle – that is unbreakable. You are all amazing – don’t wait for others to honor you. Celebrate and honor yourself and the successes that YOU create.

Happy Mother’s Day!

What about you? Post some other “for the Mom who…” sentences below or share them on the Spirit of Autism Facebook page!

Siblings in the Shadows

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“It’s not fair! Everything you say is always about Autism, Autism, Autism! You always write about him and put his pictures everywhere!”

My firstborn gets a little sensitive about my website and the training classes, workshops and marketing materials I create. Sure, I can remind her about all the special privileges she receives and the times we go places without her brother. But that isn’t what she wants to hear. She wants to know that she’s valued, unique, and most of all, heard.

Here are some things I’ve learned along the way about how to make sure siblings feel included.

Don’t keep them in the dark. The unknown is scary to children – especially when it’s surrounded by energy that may be tense and anxious. They are extremely sensitive to your feelings, so sugar coating or avoiding the subject of Autism in the home causes more disharmony than protect your child’s feelings.

Additionally, you should be open (in an age appropriate way) about what’s behind certain behaviors and that they are rarely, if ever intentional. Impulsivity is hard to explain, but there are some amazing children’s books out now on the subject of siblings and Autism. It’s a great place to start.

Consistent rewards. It’s easy to get caught up in praising your child with Autism for every mark of progress and milestone. It is necessary. You may be missing the fact that every reward is also being counted by the sibling… and if the score isn’t evened they will remember.

Find a way to celebrate and recognize every achievement from all of your children as special.

This can also go the other way: many times my daughter will feel that her brother doesn’t get a just punishment for something she may have gotten in trouble for previously. Situations like that can indeed be a sticky-wicket, as your child with ASD rarely breaks rules intentionally. Unwanted behaviors still need to be addressed, and it helps to explain to siblings that discipline may be unique to each family member but no one is “getting away with it”.

Sibling-only time. Often parenting our child with Autism requires an unequal amount time and energy for that child. It’s so important to schedule regular one-on-one time with your neurotypical child. Whether it’s a ritual of ten-minute blocks each night before bed or a once a week “girls night out” (in my case it’s my daughter), this time is to be treasured together.

Support and expectations. It’s important for siblings to feel that they are not alone in their experiences. There are many sibling support groups to share their struggles and feelings, but don’t force it. In our case, my daughter had a good time visiting one of our local groups but quickly discovered that being with people that focus on talking about her brother still makes her feel like the world revolves around him. She flourishes when involved in a group that is uniquely hers – an improv comedy troupe, art school, and Dungeons & Dragons are some of her favorites.

Equally as important, do not expect your child to be overly responsible for the child with Autism. Unrealistic expectations can lay an unbearable amount of pressure on siblings. This isn’t a free pass to skirt all family responsibility; check in often and encourage open communication throughout the journey.

What are some ways that you keep siblings out of the shadows and keep things “fair” in your house?

How to Celebrate the Child You Have

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“Motherhood (and Fatherhood) is about raising – and celebrating – the child you have, not the child you thought you would have. It’s about understanding that s/he is exactly the person s/he is supposed to be. And that, if you’re lucky, s/he just might be the teacher who turns you into the person you are supposed to be.” ~The Water Giver*

I saw this posted on the Facebook page of one of my favorite mentors, Janice Masters, and it inspired me to delve a bit further

and reflect on the quote as it relates to my own life.

After experiencing your child’s meltdown #42 for the week, have you ever caught yourself feeling envious of other parents? Having thoughts such as, “It must be nice to be able to go to a restaurant with your child!” or “I really wish I could travel with my children – other people get to go on vacation!” Maybe you’ve gone so far as to wonder what your life would be like if your child was (gulp) “normal”.

After these thoughts take residence in your head, have you also been consumed by guilt shortly afterward as I have? First of all, do NOT beat yourself about it! These thoughts are completely understandable when you have a special needs child. It does not mean you don’t love your child or that you wish he were someone else. It doesn’t make you a bad parent, even if you occasionally feel you’ve been robbed of the child-rearing experience you were hoping for.

However, since an expectation is often a resentment waiting to happen, we do sometimes need to give our perspective a little shake and examine how often these thoughts are dominating our mind.

Please know I am not saying it is not challenging to parent a child on the Autism spectrum. Believe me! But maybe if you tried on a couple of different views for size – see how they feel – some aspects of the way you interact with your child might shift.

(in honor of Janice, ask yourself) What if…

  • You were to give yourself permission to feel your feelings and observe your thoughts – all of them? Could you then release them after acknowledging them?
  • You were to look for the gift amidst the challenge?
  • You were to make a list of all the positive, amazing traits you see in your child?
  • You were to sit back and watch your child play, seeing how in tune they are with the present moment and their desires?
  • You were able to allow extra time in your schedule to dawdle and not rush so much?
  • You could loosen some of the traditional beliefs and values that no longer serve you and start some new traditions with your child that make sense for who you both are today?
  • You started capitalizing on your child’s strengths instead of focusing on correcting the perceived deficits?
  • You were to start going easier on yourself and begin to follow your own bliss?

I challenge you just take a few of these questions and see how they feel for you. Let me know if you notice any changes in your home by posting in the comments below or on my Facebook page – I’d LOVE to hear your experiences!

I’ll leave you with this:

“Become a possibilitarian. No matter how dark things seem to be or actually are, raise your sights and see the possibilities — always see them, for they’re always there.”

– Norman Vincent Peale