Autism + Puberty = Oh, Crap!

Got your attention, didn’t I?

We’ve been in a great rhythm for a while now, and it’s been glorious. Rituals and routines: check. Handy sensory tools to take to outings: check. Restricted diet: check. Digestive enzymes: check. Pre-meltdown signs identified and used to head him off at the pass: check.

A couple of weeks ago, I noticed that the pants my 9 year-old son was wearing just a few days earlier were suddenly three inches too short. Did I use the wrong drier setting…? Then I saw acne. Then peach fuzz above his lip.

“Honey? Your voice sounds funny – are you coming down with a cold? Feeling okay?”

Then it hit me like a brick to the back of the head: big P, here we come.

Having a daughter first that went through full puberty at 8 (ACK!) I really didn’t think I had anything to worry about: I thought I had it in the bag. Easy – whiny, emotional, easily irritated, overreacting to things – then a smooth ride until the following month. Of course boys are different, but when you add precocious puberty with a splash of Autism you get an interesting cocktail. The hormones seem to sneak in and reconfigure many of the connections we’ve worked so hard to attain.

What to expect

Unexpected rage over small incidents. Proper magnitude of a situation was always an issue with us. We’ve really come a long way learning appropriate responses, but with some of these reactions it’s as if we’re now starting all over again.

Sleep schedule run amok. There has been a magnified wave of insomnia in our house, followed by 15-16 hour stretches of sleep for no apparent reason. Our old rituals and occasional use of melatonin are now ineffective.

New food likes / dislikes and  bizarre cravings. Good thing I went to Sam’s Club and bought a giant, industrial-sized box of his favorite snack food… that he suddenly hates :) Ugh. I caught him spreading Nutella on a dog biscuit the other day and slapped it out of his hands in panic! The good news? He’s trying new foods. It’s all about perspective. <Kidding – no child in my house eats dog biscuits!!

Lack of appetite followed by devouring a week’s worth of groceries. I know this one is not unique to children on the Spectrum, it’s part of having a t(w)een boy.  I still found myself quite financially unprepared for living with Garfield. Anyone know a good Gluten-Free lasagna recipe?

Being overly affectionate. This is a sticky-wicket, especially because I’m a single mom. There have been some shockingly inappropriate… acts of curiosity… that I’ve swiftly nipped in the bud! I will probably need some more assistance with this topic, however, as my expertise ends with Judy Blume books and creating the perfect chocolate/salt balance about three days out of the month. Calling all male role models… help! STAT!

Exhibiting desires to control family members and pets. For some reason, my boy is getting some sort of payoff from cornering me or his sister and not letting us pass through a room, blocking us from getting something in the kitchen, and mildly terrorizing the puppy. There is an underlying theme for the sudden desire to be the “capo di famiglia” (head of household). Yeah… that’s not gonna happen. Thank you, drive through!

No desire to keep up hygiene. Both my kids exhibited this strange behavior at the onset of puberty. It takes an Act of Congress to get them into the shower more than once a week. I simply can’t relate… but I have to stick to my guns.

Regression of old behaviors. Some of the old impulsivity is rearing its ugly head, along with stimming, toileting accidents, and blurting out loud noises. It really feels as if he is choosing this behavior; it has a deliberate tone to it. However, when disciplined he is honestly surprised that he is in trouble and is truly not sure what he did. The difference now is that he internalizes it and tells everyone he’s stupid. That’s not good.

What do you do?

Open communication. The number one thing you can do is make sure your child feels safe to talk about anything with you. With Autism, you may hear questions and perspectives you’ve never encountered in this arena. It’s so important to keep an open dialogue about what he is experiencing, this will set a solid foundation that will hold up any future issues and surprises with grace.

Rinse and repeat. It takes time to create new habits. 21 consecutive days, actually. Don’t expect your child to embrace these new hormones and feelings without some confusion and resistance. Remain patient and be prepared to explain, instruct, and remind your child about virtually everything. You will be repeating yourself, so get used to it :)

Gently establish new routines and rituals. Don’t cry over what used to work. Life is meant to be fluid. I used to feel like such a failure when I couldn’t command a successful routine 100% of the time. Now my attitude is, “We’re going to try this for a while and see how it goes.” If it stops working, we make small course changes. It took me almost 40 years to learn that small, consistent adjustments make a much more profound impact than the extreme and rigid ways I would try to enforce a schedule I thought “should” work. Not to mention all the energy expended feeling bad about my “shoulds”. Now that energy is freed and I can focus on our next step. The flow is so much nicer!

Exercise! Physical movement is always a priority, but it’s really critical during puberty. We start off each morning with Superbrain Yoga. Since I work out every morning for my own sanity, my son will sometimes mimic what I’m doing (or his version of it). There are currently no structured sports or activities in our repertoire, so walks with the dog, back yard exploring, and regular trips to the neighborhood bouncy house definitely help. When the weather gets a little less infernal we will be trying some more challenging activities.

Find a creative outlet. If you have a child with Autism, I’m sure you are no stranger to their current obsession. Rather than meeting it with resistance because YOU think the interest is excessive, try expanding on it. For example, my child lives, breathes, and eats Super Mario Brothers. We’ve found a computer program that goes above and beyond playing the various games: he gets to create custom levels. He puts them to music, assigns characters, powers, scenes, dialogue, and criteria to his games like he’s been designing all his life. What an awesome gift!

Establish ‘mommy time’ boundaries. Now more than ever it is imperative that you carve out sacred time for yourself. You may feel selfish and neglectful when you first attempt this, especially if you work. But the benefits are two-fold: you are getting a much needed and deserved break to replenish your spirit, and you are teaching your child how to do the same for himself. Making sure you are balanced and happy is the greatest gift you can give your entire family.

Celebrate the good choices. No matter how small you think it is, it’s a big deal that your child is able to make a connection, follow a thought, and make a positive choice. You may feel as if your child is too old, but throwing a verbal party when you catch him being good will really shift unwanted behaviors quickly!

What about you? Have you ventured down this path yet? What things helped you tame the beast? Feel free to share by commenting below or posting on the SOA Facebook page – I’d love to hear your stories!

An Iceberg: The Autism Files by Special Guest Gabrielle Bryden

An Iceberg: The Autism Files

My son has Autism Spectrum Disorder (ASD) and would be described as high functioning. Some people ask ‘what is high functioning – does that mean he’s super intelligent?’

No, this is not what it means and I think ‘higher functioning autism’ is a better descriptor. Autism is on a spectrum from less severe to severe. The ASDs fall under the umbrella classification of Pervasive Developmental Disorders – that means the disorder affects a great many aspects of the person’s life and functioning.

It is important to remember that autism is:

PERVASIVE

When my son began speech therapy at the age of three, I told the speech pathologist that he had mild autism. She looked at me, shaking her head and said ‘there is no such thing as mild autism’. That statement hit me like a brick. Now, 8 years later, I have a far greater appreciation of what that means.

I now think of high functioning autism or Asperger syndrome as like an iceberg. Most of the difficulties are not obvious to others, they are hidden under the surface but still have a major impact on the person’s day to day life.

A child with ASD may be sitting quietly at their desk at school and may seem at ease, but on the inside they may be feeling confused, anxious, angry or agitated. They may be overwhelmed by sensory issues (e.g., noise, smell,), confused by an unstructured learning environment, annoyed by disruptive fellow students, have difficulty with processing instructions and self organisation, dread the social nightmare which is the school playground at lunchtime, and be afraid of bullies. The list goes on and on.

The child usually knows it is important to hold it all together at school and they make an extra effort to cope. This can result in hyper vigilance, where the ASD child feels like they are under attack and is constantly on the lookout for danger. Hyper vigilance is very tiring.

They usually save up all the tantrums for the safety of the home environment. I have had a number of teachers say to me that my son is generally well behaved at school and I am quick to inform them that this does not always translate to the home front.

My son’s speech pathologist used to make school visits to observe my son in situ and to advise on problems and solutions. She was a keen observer and could list all the subtle signs that not all was well (signs that the teachers usually missed). These signs would include things like excessive chewing (on shirt collars, pencils, rubbers etc.,), obsessive picking at scabs, lining up objects, hand flapping and wringing, avoiding eye contact, body slumping and leaning on supports, peculiar verbal noises/tics, echolalia (repetitive speech), uneaten lunch.

It is these types of behaviours that may be signalling anxiety and distress in the person with autism.

If you provide a supportive environment for a person with ASD, you can minimise their distress. We chose to move to a small village so the whole family could live in a healthy environment and my son could go to a small school. We address problems as they arise. It makes life easier for him but there is still a lot of ice under the water.

Today I am writing this as my son works quietly at his desk (completing homework which should have been done yesterday – did I tell you I hate homework). He was supposed to go to his sports day but refused this morning because his shirt was too small (that’s just the excuse for ‘it’s all too much for me’).

Sports days are generally hated by most kids with autism (noisy, chaotic, competitive etc.) and it’s one of those issues that we haven’t yet been able to deal with satisfactorily.

Staying at home is as good a solution as any.

__________

Written by Gabrielle Bryden, a writer, psychologist and autism advocate from Australia who blogs regularly at Gabrielle Bryden’s Blog, the link can be found here: http://gabriellebryden.wordpress.com

She writes about ASD in her Autism Files which can also be found on her blog here: http://gabriellebryden.wordpress.com/category/autism-files

I Took the 7 Link Challenge!

I was perusing through my favorite feeds and came across a unique content idea from ProBlogger that I just HAD to use!

The article recommends publishing a list of 7 links to posts that I (and others) have written in response to 7 categories, complete with reasons why I chose each particular post.

Here are my 7 links – I hope you enjoy them!

Your first post

Top Five Reasons I Volunteer Before I began my Autism site, I helped DeKalb County start a citizen branch of support for Fire Rescue. Along with several extraordinary team members and an amazing Captain, we formed a vision for what was known at that time as the Citizen Reserve and watched it come into fruition. It was an incredible experience. Since moving out of state, I watched Citizen Reserve change organization, duties, protocols, and eventually redefine itself. It seems to have circled back around to its original vision, and I can’t wait to be involved again in any capacity!

A post you enjoyed writing the most

… and That’s What Little Boys Are Made Of Writing to share my experiences and help others ALWAYS helps me. I can talk about being patient, kind, and empathetic with ease, but I am also a single (human!) mom that balances a LOT on my daily plate. I make mistakes. I get caught in pity parties and frustration at times. I lose my patience. This post was very therapeutic for me, as it reminded me that I don’t always have to live in an the analytical and diagnostic world of Autism. Sometimes my son is just being a boy!

A post which had a great discussion

Why Does My Autistic Child Scream?! I am always honored when someone experiencing the things I write about first hand comments on my posts or tweets. As much research and energy as I put into understanding my son, I am still an outsider when it comes to Autism and Sensory Processing Disorder. I don’t feel what he feels, or see the world quite the way he does, though I always give it my all! I was thrilled to read Jason’s thorough remarks about this post, especially when it was only my second post on the blog!

A post on someone else’s blog that you wish you’d written

Little Specks of Autism by stark. raving. mad. mommy. This post is just beautiful. I related to it so much! I especially think about all the quirky rituals I have in my daily life, from having a favorite plate that no one else can use, to my odd parking space logic, to accidentally bumping my elbow on the table and having to re-create the same volume of pain on the opposite elbow for it to feel “even”. Yep, we all have little specks of Autism alright!

Your most helpful post

Parents: Who Supports Us? This is dedicated to all of us that live with and fight for our special needs children. It’s not a job for weenies! It reminds us that our feelings are natural, however appropriate or inappropriate we are judging them to be at the time, and that support for US is vital to our children’s success.

A post with a title that you are proud of

“I’m funny how? Funny like I’m a clown, I amuse you?” This was a really fun bit to write explaining how children on the Spectrum typically do not understand sarcasm. Ironically the entire post was sprinkled with said sarcasm, as it runs rampant in my house and in my head.

Actually it’s a tie…

Are You Going to the Hardware Store for a Loaf of Bread? Another playful post that starts off with a famous scene from The Electric Company. Though quite humorous, the post really hones in on our expectations and how it’s not really fair to keep demanding things from people that they are not capable of giving.

A post that you wish more people had read

A Letter to my Son – Clearing the Past Read with tissues nearby. That is all.