2014-12-28 11.57.09

Weekly Tips for Emergency Responders: Girls Have Autism, Too

2014-12-28 11.57.09For nearly ten years I have been ensconced in the world of Autism. I have spent countless hours in research, created home therapies, advocated for my son, created a Blog about our journey to help other parents, and eventually birthed a training program for emergency responders. For the past few years I have trained many police and fire departments, disaster response groups, EMTs, hospital security officers and more.

At times during this path, I have come across some Autistic behaviors and traits that better describe my neurotypical daughter than my son. I quickly dismissed them as Autism, mostly because I was comparing them to the “classic” signs I see in my son and teach about. She is very verbal. She doesn’t have (many) sensory processing issues. She doesn’t seem to have gross and fine motor deficits (though neither of my children can ride a bike). She was fairly social in elementary school. She can dress herself and doesn’t need help bathing or using the bathroom. She understands sarcasm and others’ facial expressions.

Recently she approached me with comments about her social awkwardness and lack of a filter when she talks to people and wondered if she might have Asperger Syndrome (a high functioning form of Autism). We started to look at the big picture:

  • As a toddler, she lined up all her Fisher Price farm animals and each one sequentially received an equal number of rides in Farmer Brown’s tractor.
  • When she pretended to serve family members tea, it was repetitive and always in an order that she proclaimed. If someone switched places or spoke out of turn she shut down.
  • She would hide under the table or in her room if we had any kind of company at the house.
  • She walks on her toes almost 90% of the day when she’s up and around.
  • She would refuse to get out of the car if we arrived somewhere and it didn’t match the schedule or routine I first verbalized before we left.
  • She only eats four foods, and they have to be very specific types within those foods. She has gone five days without eating as a preschooler because I tried to make her try something new (“children won’t starve themselves”… uh-huh). She literally gags or throws up when trying a new food.
  • She abhors showers. Now as a teen, she takes them when she absolutely has to because she’s aware of what others think. But it’s still a struggle.
  • She won’t wear shoes anywhere unless she absolutely has to, and if she does they’re usually flip flops.
  • She missed a third of 5th grade due to social anxiety and “illness” that couldn’t be defined. By 6th grade I had to homeschool her after she completely shut down several weeks in a row during Middle School.
  • She has no interest in shopping, makeup, hairstyles, shoes, hanging out at the mall, or any other typical “girly” things.
  • She only wears comfortable loose clothing and leaves her hair down.
  • Her only friends live in the computer, except for a childhood friend she met at age 5 that sees her from time to time.
  • She HATES new stuff. A new smartphone or computer will cause her great anxiety because she likes things the way she is used to them and doesn’t do well with change.
  • She has joined multiple groups and classes and always quits after a few sessions due to social anxiety and perceived notions that everyone hates her.
  • She was diagnosed as OCD, which fits, but there are also caveats and certain missing pieces to this.
  • She wakes me up in the middle of the night citing crippling fears of random things that might suddenly go wrong and cause her to die or be injured. Once a thought like this gets into her head she can’t make it stop.

Of course there is nothing wrong with some of these behaviors, I am not making any kind of judgements… just looking at the big picture. I dismissed many of them as her being an “eclectic” child, while secretly blaming some on bad parenting: me giving her too much leeway because I’m compensating for being a single parent and having to work so much.

Then we starting doing some digging together, met with her counselor and she received an official diagnosis of Asperger Syndrome.

In Georgia, 1 in 39 boys are diagnosed with Autism, while it’s only 1 in 181 girls. Whether or not that means Autism is more prevalent in boys or that girls are not being diagnosed because it presents so differently, we don’t know right now. Either way, recognizing Autism in girls can be tricky. Here are some specific things to look for or be aware of:

  • Most often seen as just “eccentric” or “quirky”
  • More expressive than male counterparts
  • Retreat into films, books or characters
  • May be highly educated but slow to comprehend
  • May not do well with verbal instructions
  • Anxiety and fear are predominant emotions
  • Will typically shut down in social situations but can socialize in “small doses”
  • Often prefers the company of animals to humans

These traits may not ever come to play on the scene of a crime, fire, disaster or medical call, but the more you arm yourself with Autism education the better you can do a scene size up and make fast decisions. You never know when you see someone “not acting right” and something from a blog post or Spirit of Autism training class will pop for you and make a difference in the outcome of the situation.

spirit of autism sensory

It’s All About the Sensory

spirit of autism sensoryOkay, not ALL… but sensory issues play a bigger role in the daily lives of children with Autism than you might think.

I have always tried to explain this to the adults, teachers, caretakers, and yes, even physicians in my son’s life, who insisted that my child needed to be medicated for hyperactive and impulsive behavior.

There were certainly quirky and challenging things about him, even from birth. But I also had a girl first; so many of his odd behaviors were instantly dismissed as “boy stuff.” The real trouble started when he went to Pre-K and had to transition to different activities, sit quietly in circle time, and interact with a group of peers.

I remember waiting months to see a highly-acclaimed pediatric neurologist before my son was officially diagnosed with Autism. He was four at the time. For our long-awaited appointment, we were in the waiting room for an hour and in the doctor’s office waiting for another hour. What four-year-old would NOT be climbing up the walls at that point?

The doctor came in and promptly spent 10 minutes with us.

“Write your name.”

“Stand on one foot and hop.”

“Copy this drawing of a tree.”

“Ma’am, your son has ADHD, fine motor dyspraxia, ODD (Oppositional Defiant Disorder), and maybe some sensory stuff going on. Here’s your prescription for Adderall. See you in six months.”

Whoa… wha? Oppositional DEFIANT Disorder? He’s FOUR! When my daughter was four I practically wanted to SELL her! (Kidding. Mostly.) Of COURSE he was hyper! We just waited TWO hours to see him! And what’s with the meds? No explanation of any of these “disorders”? No constructive suggestions? No support or help?

Nope.

I researched all of the labels that supposedly defined my baby boy. Yes, he was hyperactive, but the first one that really grabbed my attention was sensory processing disorder. I went through a checklist and instantly started understanding my son and the world he lives in. Many of those “quirks” were a direct stress-response to how he interprets all the sensory input from his day-to-day environment.

We had an entire sensory evaluation done with a different specialist, and eventually arrived at the Autism diagnosis.

Once I started to differentiate between “My body hurts, I’m exploding inside and need help” and “I’m being a boy and testing my boundaries” my whole world changed, and so did my son’s.

The school system did not follow suit, unfortunately. During our IEP (Individualized Education Program) meetings I provided all of his sensory triggers in a document, what calming methods worked for us, and physical toys and music that he could keep in his private break area at school. The Special Education Director for the district continued to try and strongly suggest he be medicated.

I was actually told in one of these meetings that I was the type of mother that would deny my child insulin if he had Diabetes just because I wouldn’t put him on Adderall or Ritalin. Unbelievable!

I calmly repeated, “We need to start here, with these sensory issues. It is tangible – you can SEE he is struggling in direct response to these triggers. Why not start with what we know and work out from there? Let’s see what behaviors are left after we address some of these root causes and we can re-evaluate from there.”

Although I finally began homeschooling my son after years of battling with the school, this information is still critical. Almost every outburst, meltdown, or seemingly “defiant” behavior can be traced down to a sensory problem my son is experiencing at the moment.

Recently I ran across Asperger Experts – two young men with Asperger’s Syndrome that have navigated their way through the roughest times of childhood and adolescence and are now helping parents and educators do the same.

They have a program called “Fundamentals For Thriving Bundle.” It’s been extremely helpful for me to continue to understand, teach and support my son in a way that he is most receptive.

They published a video called, “The Sensory Funnel.” It’s a MUST-SEE if you want to learn more about your child’s or student’s sensory issues, how they affect day-to-day living, and what you can do to help him or her succeed.

Watch the video below and let me know your thoughts! I’d love to hear if it clicked for you like it did for me, and any other comments, successes or struggles you’re going through right now!

HeART of the Spectrum

HeART of the Spectrum Community Arts Center

I was recently introduced to an amazing organization called HeART of the Spectrum. It’s an inclusive art center in Seattle, WA founded by Michael Tolleson and Jack Anderson to encourage and support the artistic abilities of individuals with Autism and Asperger’s. A variety of classes as well as the HeART of the Spectrum Mentoring Art Program are offered at the center, geared toward individual interests and abilities.

In addition to the Mentoring Art Program, HeART of the Spectrum also has a unique gallery that features emerging artwork by individuals on the Autism Spectrum. Artists of all ages and styles have contributed their work, and over 50 pieces now hang in the ground floor storefront.

With so much focus on Autism as a disorder or disability, I think it’s extremely encouraging to see these two artists changing that by showing us the creative, focused and brilliant minds of those on the Spectrum. They are truly celebrating the gifts of Autism.

Because art can be the only form of expression for some of the artists who work at the gallery, Anderson and Tolleson say they strive to help them gain understanding through exposing their art to the greater community.

You can see video coverage by The Seattle Channel here:

For more information on HeART of the Spectrum, visit the gallery’s website or call 206-478-8342. I can’t wait to visit in person SOON!

Intro to NVC for Asperger’s Teens and Adults

If you are a teen or adult on the Autism Spectrum or a parent or professional that engages with someone on the Autism spectrum, you may be interested in how the Social Skills practices of NVC can serve you.

My new friend Bob Yamtich is an Aspie adult who is trained in a social skills process called Nonviolent CommunicationSM (NVC). He has shared this process at Asperger’s support groups in the San Francisco Bay Area and many people shared how much it contributes to them in their communications.

He is visiting Atlanta and offering an introductory Tuesday, June 19, from 7 to 9 pm at the workshop space of local NVC trainers in Tucker. It will be will be a combination of mini-lessons, live modeling, and active practice will help participants get an introduction to Nonviolent CommunicationSM. Bob invites teens and adults on the autism spectrum, and professionals and parents who work with people on the spectrum.

Some great things included in this workshop:

  • Mini-lessons include distinctions between needs and strategies and between empathy and sympathy
  • What clues can we use, both cognitive and feelings-based, to connect to what we and others care about?
  • Learning self-connection, using logical abilities to hear what is important to somebody, and developing authentic self-expression

So what the heck is NVC?

I absolutely love the description on the site of local GaNVC trainers, Sacred Space:

What is unique about Nonviolent Communication (NVC), beyond other restorative and life-enriching tools, is that it gets us out of our stories — the stories that we’ve already told over and over to no avail to deaf or disinterested ears, without relief. NVC moves us beyond relating what’s happening to us via analysis, blame, criticism, evaluation, or judgment — beyond stories based on verbal violence. NVC helps us address what’s alive in us today … this moment … so that our histories don’t continue to overshadow and dictate our present.

The tools of Nonviolent Communication help us reach the frustrated needs behind strong feelings and the stories. NVC connects us with others through attention to the universal needs that we all share, thereby fostering empathy. NVC fosters understanding, genuine connection and the resulting opportunity to jointly co-create strategies for resolution that can address the needs of all concerned. This practice can help assure that all voices are valued and heard before strategies are formed.

I am very excited to learn more about the connection Bob has discovered between NVC and helping those on the Autism Spectrum be more in touch with their needs and feelings. I know this knowledge will help me in my training programs for Emergency Responders.

If you are local to Atlanta and wish to attend this workshop, please RSVP to Bob at bobyamtich@gmail.com.

Download the flyer here for more information, or to print and share.

I will be posting a follow up regarding what I learned, so look for that soon!

An Evening Seminar with Angie Marshall

I am so excited to bring this special opportunity to my Atlanta friends, fans and followers!

Parents, if you and your child are struggling with:

  • Potty-training
  • Sleeping issues
  • Verbal communication
  • Socializing with other kids
  • Repetitive movements
  • Following simple instructions
  • Reading issues
  • Sensory meltdowns and temper-tantrums
  • Sound sensitivity
  • Aversion to touch and texture
  • Coordination
  • Picky eating, food sensitivities

Sound Training Helps Children with ADD/ADHD, Autism/Asperger’s Syndrome, Sensory Dysfunction, Dyslexia/Reading problems

Spirit of Autism and The Listening Center

proudly present

An Evening Seminar with Angie Marshall, MBA

USING SOUND TRAINING to
IMPROVE AUDITORY PROCESSING
and SENSORY SKILLS

Thursday, June 16

6:30 pm

Under the Umbrella Play Center
8560 Holcomb Bridge Road
Suite 120
Alpharetta, GA 30022

LIMITED SEATING – hurry before spaces are gone!

RSVP by Monday, June 13

440.939.6211 or go to the Seminars page and sign up!

Please feel free to download the PDF flyer on the bottom of that page and share it with any other families that might benefit from this FREE seminar.