IEP Meeting

Getting What You Need and Want from Your IEP Meeting: Before, During and After

This week’s post is from special guest Erica DuPont, LCSW

Before: Positive self-talk!  If you tell yourself that everyone is against you in the meeting, then you will present with a negative attitude during the meeting.  Most teachers want the best for kids and are willing to support your requests and somewhat mentor you through the educational system. Having teacher support can go a long way.  If you are able to understand what resources the teacher needs in order to really help your child, then you can enlist an advocate to ask for those resources.  This way, the teacher is not put on the spot, or thrown under the bus, and the “neutral” person is asking for the additional support.  Keep the teacher on your team – let your advocate be the one that brings up the uncomfortable questions or suggestions.

Preparation is the key to success no matter what professional field, sport, or activity you engage in. The same holds true for IEP meetings. If you want to have a great IEP meeting then you must prepare ahead of time. When I accompany parents to IEP meetings as a professional advocate, I prepare ahead of time and don’t just show up to the meeting and try to wing it. Read over the list of academic standards for your child’s grade.  This will give you a starting point to know what goals and objectives would be appropriate to ask for on your IEP.  There is so much conversation and dialogue during these IEP meetings and it can be very emotionally draining.  Do not attend an IEP meeting alone. Even if you dress up your neighbor and they do not say a word, their presence is a support.  It is helpful to have someone taking notes for you and to bounce things off of after the meeting.

During: Stay calm.  It can be overwhelming to sit at a table full of adults…but do not forget…you are an adult too!  Actually, you are the most important adult at that table.  It is your child that all these people are meeting about.  It is within your right as a parent to excuse anyone from the meeting that you do not feel has an educationally relevant reason to be there.  You have much more control and power in these meetings than you may think.  If there is something you do not understand, please stop them and ask them to explain in detail.  It is helpful to have your list of possible goals and objectives with you so you can refer to them as your IEP is being written.  However, before the goals and objectives section of an IEP, there is a “Present Level of Performance” section that is reviewed by the team.  This is a summary of how your child is CURRENTLY doing in academics and other related areas.  Be sure to list all your concerns in this present level of performance – goals and objectives cannot be written if the information is not supported in the “Present Level of Performance” section.  You can always ask to go back and add to this section during the meeting.

These are common questions that you may be asked about your child during the IEP meeting. Consider these in advance so you are prepared:

1. What are your child’s strengths?

2. What motivates your child to learn?

3. What are your child’s areas of weakness?

4. Have you found any techniques or strategies helpful in addressing your child’s weaker areas?

5. Do you have a goal or anything in particular that you would like your child to learn this year?

In addition, you also have the right to ask questions.  Here are some examples of questions you might want to ask the team:

1. What specific learning strategies are written on the IEP?

2. Will peer tutoring by used with my child?

3.  Is the IEP academic plan based on learning functional skills? (reading a recipe, ordering from a menu, counting out money, telling time, etc.)

4.  At what age do you being involving my child in goal setting and self-advocacy

5. Do you feel my child qualifies for an FBA (Functional Behavior Assessment)?

After: What’s done is done, right?  No! You can request an IEP meeting at any time, as many times as you would like during the school year.  If you go home and read over your notes, discuss the meeting with your friend or partner and you feel something was missed, do not hesitate to call anther meeting.  The IEP is a working document which means it can always be added to or changed.

Make sure you get copies of everything.  Ask for a copy of the IEP, any pages you were asked to sign and the conference summary.  Please read over the conference summary carefully.  This summary addresses what topics were discussed during the entire meeting.  If you feel something is missing from the summary or do not agree with something on the summary, you can ask that it be changed or added or deleted BEFORE you sign it.  I know you are tired once the meeting comes to an end, but don’t give up yet until you feel comfortable with those conference summary notes!

Give yourself a pat on the back, these meetings can be stressful but you can feel more prepared and less overwhelmed with the proper support.  For more great IEP information for any state, including thousands of goals and objectives and tons of resources, check out our website at www.seemyiep.com.

Best of luck to you and your family.

Product Review Part II: Step Ahead of Autism

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After reading Step Ahead of Autism by Anne Moore Burnett, I felt that the stories and tools provided were so thorough and practical that I had to break up my review into two segments.

This is Part II of my review.

Steps Six through Eight

In each step Anne shares a part of her story and then turns her experience into practical tips and exercises for us to practice immediately.

Step six is ADVOCATE. Here is where we journey with Anne into her first IEP meeting experience, which wasn’t smooth by any means. She openly and courageously shared how she was caught off guard, how she took her power back, and how she successfully created the right support system for her son.

This chapter also offers a complete IEP Checklist, so we can learn from her experiences and show up to our own IEP meetings armed with the right resources and tools. Bravo!

Step seven is ASSESS YOUR ATTITUDE. Don’t let this short chapter fool you – it’s just as packed with nuggets of wisdom as the more lengthy ones. The biggest takeaway here is best said in the “Exercises” section:

A positive attitude enables you to look at what appears to be an impossible situation and find alternative ways to make it work.

She also explains how neurotypical children fuss when their basic needs (like structure and routine) aren’t met, but children with Autism actually suffer pain and discomfort. This is yet another simple key into the lives and minds of our little angels. She also reminds us to steer clear of pessimists and negative thinkers (a great outlook for all of us, not just special needs parents!). As the Law of Attraction guru Andy Dooley recently shared in his Atlanta workshop, “Don’t let people coerce you onto the Bi**h Train, do what it takes to stay on the Bliss Train!”

Step eight is ASSERT YOUR AUTHORITY. Boy did I relate to this chapter, as my own son is currently going through puberty as well. I learned some more about what is going on inside his body and how to truly listen to my intuition, despite what the naysayers in my life may proclaim.

Anne again graciously shares some of her less-than-stellar decisions and reactions, which helped me feel a lot better for being human. (I AM human, right?)

The doctor described how puberty is like a fire alarm going off inside your body, and how in children with Autism it amplifies sounds, smells, and crowded spaces, which can and DO reignite old behaviors. When our children endure these magnified senses all day they must have an outlet at the end of the day to release the stress.

To make your child most comfortable in their environment will help them flourish. This may mean looking at different options for school, homeschooling, or other major changes. Follow your heart, and don’t let complacency, fear, and lack of motivation squash your authority. I am currently in complacency with my own situation, and because of this chapter I was able to recognize it and start making calls about some new supports for Justin.

Step nine is DELEGATE. In this chapter, the author comes to the realization that she hadn’t been very active in ministering to her own needs because she was so focused on her child. Her tales of isolation due to public experiences with her child as well as judgment and questioning from others hit a very sore spot with me. I’ve been a single mom for eight years, so I very much related to not trusting others, feeling judged frequently, and doing everything myself. Chapter nine inspired me to merely consider opening my world (scary!) to others, including other caretakers and other parents.

Step ten is ASPIRE. Programs like drama, art and music helped tap into the right brain of Anne’s son, which slowly softened the rigid edges associated with Autism. He also became part of a swim team, which grew him to be a part of a group, yet it still met his needs for a manageable world of synchronized order.

The biggest message in this chapter is to find the balance between not hiding your child’s diagnosis but not letting it stand in the way of their progress. If we focus on the positive gifts our children possess, benchmarks will be reached and celebrated. Even independence may not be out of reach.

Anne wraps up this masterpiece with real life examples of how she put the steps into practice, letting us see that these tools are practical and tangible.  She helps us determine our own milestones and gauges for success, and gives us permission to continually reassess along the way. That’s really what it’s all about – the journey.

Anne has a website that offers much more in the way of resources, connections, and coaching. She also lays out the steps on how to start your own Step Ahead of Autism support group to help find strength, joy and encouragement with others on this path.

I’d love for you to share what you thought of this book by commenting below or posting on the SOA Facebook page!

Ch-Ch-Ch-Changes

This isn’t my regular writing style, but I’m going to be extremely transparent right now.

I don’t know about you, but 2010 was quite a roller coaster ride! It was a year of major upheaval, victories, disappointments, and overall waves of contrast that offered opportunities for extreme growth! My biggest disappointment is that my business hasn’t taken off and served you in the highest way possible. Why? I believe it’s because I was all over the map – trying to be everything to everyone – which resulted in burning myself out and helping no one.

Well, it’s 2011. Maybe it already started out kind of icky, or maybe I haven’t quite kickstarted my heart yet (thanks, Motley Crue!). It doesn’t really matter how yesterday was, because the fact of the matter is that we create our experiences. Each day, each hour, each minute offers a chance to change my thoughts and change my reality.

It’s time for me to get laser focused on how to help you. Whether you’ve just received an Autism diagnosis for your child or you’re at the end of your rope because you’ve tried everything an are still frustrated and overwhelmed, HELP IS ON THE WAY.

Look for changes at Spirit Of Autism, including a regular, informative newsletter, surveys on exactly WHAT YOU NEED FROM ME, and much more support in the way of programs, teleclasses, and videos. I am your advocate, and I can’t wait to learn from you as well!

Also stay tuned for more standardized emergency response training programs in the works, as I collaborate with some pretty cool people that want to help!

Family changes

In addition to all the wonderful things I am doing at home with my son, this year I am committed to going 100% Gluten and Casein free. Justin has also excitedly started a customized plan using Nutrition Response Testing and whole food supplements, and is soon to start the EnListen® Listening Training Program. I will share with you our progress and results as we go through these amazing opportunities to help Justin improve things such as:

  • attention, focus and concentration
  • self-confidence
  • cognition skills
  • reading and writing
  • comprehension and memory
  • athletic performance
  • speech clarity
  • organization
  • body function
  • digestion
  • nutritional deficiencies
  • stresses and imbalances in the body

As for my daughter, my goal last year was getting her as much sibling support as possible. However, between her brother’s needs and my business, she already has strong feelings about all the focus and attention our family puts on Autism. Our new goal (which has already started to manifest – YES!) is to get her together with like-minded, creative peers so she doesn’t feel so isolated and withdrawn. Thanks to a wonderful guardian angel I just met, she will be homeschooled with a small group of kids instead of all with me. She also just joined a D&D group, which should open some new opportunities for her to share her imagination!

As for my New Year’s goals… I vow to be more centered, focused, and step into my best self without limits. I am going to stop trying to be super woman and  start allowing help from others, breaks, even down time for myself. (WHAT?!?!) You see, the best gift I can offer myself, my children, and all of you is to shine my light as brightly as possible. To do so, I must be as happy and healthy as I can be.

What about you? What are you letting go of? What are you stepping into? I’d love to hear about it!