Regression or Progression?

I recently did my mid-integration checklist and interview for Justin’s Listening Training. As he is getting ready for his next intensive, I wanted to share some amazing gains I observed – new behaviors that I attribute to his first round of EnListen® and additional supports from home, including:

  • Introduction of Chewelry to redirect chewing (I’ll be dedicating an entire blog post to this great product shortly!!)
  • Addition of digestive enzymes, probiotics, and Omega Fatty Acid oil to his diet
  • Increased yoga and fitness routines after school

Understand that every child is different and may or may not show the same gains or at the same rate, especially after only the first intensive. These are things that improved in my child:

  • He now understands and carries out multi-step instructions (e.g., “Put on your socks, brush your teeth, and meet me in the kitchen.”)
  • Bathroom experience: his body now signals that he has to go – no more accidents (thank you!); it is an easier experience – 15 minutes in the bathroom instead of 45!
  • He is aware of possible consequences before proprioceptive crashing – Justin will now run up to things and stop and think first about whether or not it might be a good idea. He redirects himself for the first time.
  • Empathy, remorse – he consciously apologizes after accidentally hurting someone and doesn’t repeat action!
  • Fine motor improvement – he is better able to dress himself; he even wore jeans for the first time and buttoned them with no assistance!
  • Initiating bedtime on his own – he’s getting tired earlier in the evenings, and bedtime is no longer a long and drawn out process (except when he’s being a typical kid!)
  • Aware of why he has certain behaviors – when asked why he is displaying a certain behavior he is able to provide a logical answer rather than tuning out or shrugging it off
  • Report card improvement
  • Little to no spinning – much less stimming (excluding the return of recent verbal outbursts)
  • Realizing where he is in space – there is much less holding the walls when walking and chair tipping when sitting
  • Coordination, balance improvement – squatting, skipping, hurdles and obstacle courses, jumping improvement
  • Tactile gains – introduction of new clothing materials that previously were not tolerated
  • Initiating affection – this is a biggie! He is equating more with people and less with things.
  • Showing more independent thought and less echolalia (and much less regurgitated TV speak!) when asked questions or engaged in a conversation

Less than desirable changes noticed:

  • Expressing more frustration – this is due to experiencing certain feelings for the first time. Listening Training has begun the process of allowing him to be receptive to and in touch with his emotions. Justin will need to now learn how process those appropriately.
  • More meltdowns
  • The return of noises, verbal outbursts and personal space issues
  • Less motivation to complete schoolwork

Although this may appear to be a regression in behavior, I realize that Justin is experiencing a reorganization of how he sees the world and processes information. It’s going to take time for these changes to be integrated into daily practice. I have to dig a little deeper. Some of these behaviors are not necessarily a regression, rather familiar ways of coping with new feelings and experiences.

He is also reflecting his new feelings of frustration through verbal stimming and needs to learn new and appropriate ways of expressing them.

The next intensive will continue to address sound sensitivity as well as introduce organizational skills and theory of mind.

It is easy to focus on the behaviors we don’t want from our child when we see them, and immediately assume things are headed south once again. I don’t know about you, but raising a child with Autism is a roller coaster ride full of gains and regressions. It’s part of the process and I wouldn’t have it any other way.

Looking at this progress now on paper, he truly has made some incredible gains. It is imperative that the school and I continue to support him with reward systems, redirection, and behavior alternatives as he learns to integrate information in a new way.

How Does Fitness Help My Child With Autism?

I don’t know about you, but for the past four years I’ve been trying to get my child involved in an extra-curricular activity, achieving less than stellar results. At age four, even before an Autism diagnosis, I knew he had an extraordinary amount of energy to burn and his sister was in Karate. It made sense to me to get him started in the youngest group. I thought it would teach him focus and give him an outlet for some of that energy. HA! Nice try, Mom. He was kicked out in the first two minutes of his first class, and asked never to return even as a spectator for his older sis. OY!

Since then, we’ve tried some easy sports, Cub Scouts, even a cooking class (an energetic child on the Autism spectrum with sharp objects… what was I thinking?!?!). It all boils down to the same issues: lack of coordination, lack of focus, too much energy, inability to be patient and wait his turn, unable to understand what is expected of him, sensory overload, gross motor deficits, and just plain behavior issues sometimes.

I’ve always made allowances (and excuses) for why we can’t participate in the same things as some of his neurotypical friends do. But now he’s 8 and he still can’t ride a bike. We will be trying piano lessons (a natural gift for him), but that still doesn’t solve any of the above named issues.

You ask, “Don’t they get fitness in gym class?” Not really. In fact, many schools have even CUT physical education from their curriculum due to budget cuts and increased focus on test scores! And sports (as I’ve experienced) are really hard to participate in when you can’t master basic, foundational moves or stay on task long enough to understand what to do.

Using my background of Autism Research and Fitness along with the mentorship of Eric Chessen (Autism Fitness), I adapted and developed a fun and effective way to help my child’s long-term skills in fitness and movement. The right fitness movements have an amazing ripple effect on the whole family. Here are some things that have improved in my child already, and will continue to do so as I work with him further:

Self-esteem and confidence. He sees himself being successful at the movements and courses we set up and it makes him want to try new things. He knows it’s a safe place to not quite get it right.

Coordination. His balance and posture have improved greatly since we started. He used to actually lean to one side and not be able to even stand on one foot! Now look at him go!

Sensory issues. His favorite fitness moves offer a wonderful sensory break from an overload or meltdown. The best part? Most of them can be done in a small space using just his body weight!

Attending. He can now stay focused longer when asked to do something, including waiting his turn! He’s far from perfect, but my motto is progress not perfection.

Goal setting. He finally understands the process of being unable to complete something and how practice leads to the mastering of a skill. This is huge!

Independence. He now takes pride in setting up his own mini obstacle course for us to do together. He can even create one for his peers to try!

Overall health and fitness level. Face it, getting up and moving is good for the whole family, even if you can just do a little bit! Turn off the TV, hide the DSi, take the batteries out of the Wii remote, and go outside and PLAY :)

Contact me to find out how I can also help your child succeed using Fitness 4 Autism! It’s really fun for the entire family!