autism wandering child

7 Vital Tips for Autism Wandering Prevention

My son was 18 months old. He was standing next to my bed, humming, as I was folding laundry and separating the piles. Then he walked out. In the time it took me to fold a pair of jeans, the child had walked to the other end of the house, found my keys, figured out which one was the car key (!), went outside, opened the trunk, and climbed in.

When he was in First Grade, I dropped him off at school, walked halfway to his class with him, then went on my merry way after kisses and high fives like usual. It just so happened that I forgot something from the house that day. Coincidentally, I also needed gas and went left instead of right, passing the school once again. About four blocks from the school, in a direction I normally never would have traveled, was my son, walking with his backpack and singing, without a care in the world. He apparently walked right out of the building after we parted in the hallway, and the teacher assumed he was absent that day. No one knew! Imagine what could have happened if I had turned right like I always did!

Here are 7 tips if your child is prone to wandering

  1. Safety-proof your home. Home should be a safe haven. In addition to traditional childproofing for small children, you will have to take some extra measures for your child with Autism.
  2. Install door alarms. Many children with Autism are prone to wandering. Alarms offer great back up protection.
  3. Arm your child with a form of communication. Whether your child is verbal or non-verbal, communication is a challenge. Create a visual safety book for your child with key questions and answers he or she may be asked in an emergency situation. Practice, practice, practice!
  4. Get to know your neighbors. It’s a good idea to introduce yourself and your child to your neighbors. You can explain what Autism is, along with some of your child’s behaviors that would strike other people as odd. This way they will call you instead of the police, or help direct your child home if found wandering.
  5. Register your child with public safety. Contact your local police precinct, fire department, and hospital and register your child with their database of special needs families.
  6. Use social stories. Teach your child how to handle emergency situations like fire, burglary, strangers at the door, when someone is hurt, and calling 911.
  7. Get QR Code iD apparel for your child and subscribe to their website.

What is QR Code iD?

People who have Autism, cognitive disabilities or other special needs or health issues may be unable to state personal information such as name, phone number, address, medications taken, where Mom and Dad work, issues peculiar to that day, the hotel where the family is staying on vacation, etc.

If your child is lost or wanders, rescuers need to know who to call, and how to help.

QR Code iD creates a way to put this information in one place. This information is accessed from any computer browser, either by entering the URL manually with the computer keyboard, or by scanning a QR code printed directly on the child’s clothing, both of which will take you to the client’s non-secure homepage. This page displays all the information that a loved one wants someone to know when finding the child. This information can be updated REAL TIME!

QR Code iD commissioned Special Needs Artists to create beautiful artwork to put on shirts, buttons, key chains and other products that have QR codes on them. These talented Special Needs Artists will be discovered and contracted to contribute original artwork for our products.

Membership is only $29.00 a year for this invaluable service. I highly recommend it!

Use “spirit 15″ when you check out for 15% discount through July 4!

Do you have any stories of your child wandering that really frightened you? What did you do? Share your comments below or post them to the SOA Facebook page!

When Your Child Wanders…

When Justin was in first grade the principal had a strict policy of no parents walking their children into the classroom. (More about that inane rule and how I combated it in another post…) But for that portion of the year I was entering the school with him and saying goodbye just before he turned the corner to head to class.

One morning I dropped him off, business as usual. At that time, I would typically turn right out of the parking lot and head to work; however that day I realized I forgot my lunch AND needed to get gas in the car. I drove back home and then past the school once again toward the gas station. The bell had rung and school was in session. About six blocks past the school I saw a small child with a backpack casually walking down the street. My heart sank as I realized it was MY child.

When I pulled over and brought him back to school they had no concern whatsoever that he hadn’t made it to class – they simply thought he was out sick that day. I went over and over in my head the scenarios that COULD HAVE played out if I hadn’t forgotten my lunch and needed gas that day. The thought of the myriad possible outcomes were magnified by the realization that I would not have even found out he was missing until I went to pick him up at the end of the work day.

Another time, he was playing with the garden hose outside in the front yard. This was a normal activity for him, and I always peeked out the window frequently to check on him. On this particular day, I blinked and he disappeared. Gone. No shirt, wet pants, and no shoes… vanished.

I immediately grabbed his sister and her best friend and started screaming his name while walking up and down our dead end block. Some neighbors heard my panicked shouts and offered to drive the vicinity and look for him. A thousand thoughts were racing through my head as I searched every nook and cranny of the woods, front and back yard, inside the house several times (maybe he’s just hiding, oh please God let him be hiding), and down several neighboring blocks.

I called the police. Being in the Fire Department I heard my own call go over the scanner and it really hit me. My baby is lost. What have I done? How could this have happened? It was just a few minutes…

I will never forget the feelings that washed over me as I saw my neighbor driving up with Justin in the front seat. Tears welled up as I experienced every possible human emotion simultaneously, hugging him tighter than I ever have. I was able to cancel the police call and take my little angel home to dry off.

He had no explanation for why he left the yard or where he was going. These two experiences absolutely changed my perspective about Autism and wandering.

How do you minimize the risk?

I know how lucky I am that my son is still with me today. That is part of what drives me to train Emergency Responders. However, you must assume that police and fire currently have no knowledge or Autism training and take preventative measures. Here are some practical steps you can take so you don’t have to go through what I did:

1. Safety-proof your home. Home should be a safe haven. In addition to traditional childproofing for small children, you will have to take some extra measures for your child with Autism.

2. Install door alarms. Many children with Autism are prone to wandering. Alarms offer great back up protection. You also may want to consider a personal GPS device for your child.

3. Carry an Autism Emergency ID Card. Emergency ID cards will help people on the scene of an emergency know how to approach and communicate with your child. Include contact information and important behavioral traits of your child.

4. Have your child wear an Emergency ID Tag. In addition to ID cards, tags are another great way to get the attention of emergency responders. If your child cannot tolerate wearing tags around their neck or wrists (if sensory and tactile issues are present), try attaching them to your child’s shoelace. (This of course would not have helped when my child was shirtless and shoeless… but there are so many different kinds of ID tags to choose from now, thank goodness)

5. Arm your child with a form of communication. Whether your child is verbal or non-verbal, communication is a challenge. Create a visual safety book for your child with key questions and answers he or she may be asked in an emergency situation. Practice, practice, practice! I also highly recommend Signing Families for additional communication resources and tools.

6. Get to know your neighbors. It’s a good idea to introduce yourself and your child to your neighbors. You can explain what Autism is, along with some of your child’s behaviors that would strike other people as odd. This way they will call you instead of the police, or help direct your child home if found wandering.

7. Extend the introduction to places you frequent. Introducing your child to a local store owner, diner staff, or other places you regularly visit can go a long way. Instead of a knee-jerk reaction to an odd or inappropriate behavior, a clerk will know your child and be able to intervene safely or inform you of what they may observe. This is also a good idea in vacation spots!

8. Register your child with public safety. Contact your local police precinct, fire department, and hospital and register your child with their database of special needs families.

9. Teach safety procedures to your child. Even with Autism ID cards and tags, your child may still cross the street without looking or enter a dangerous situation. Use real-life situations (like being lost in a store) and repeat drills with your child as often as possible.

10. Use social stories. Teach your child how to handle emergency situations like fire, burglary, blackouts, strangers at the door, when someone is hurt, and calling 911.

Have you had any close calls with your child? What preventative measures do you employ in your home or neighborhood? Let me know by commenting below or posting on my Facebook page – I always welcome your stories and feedback!

Keep Your Little Ghosts & Witches Boo (hoo)-Free

Trick or Treat Safety Tips for Youngsters

Children should carry or wear something lit for visibility on a dark night – this could include a flashlight, glow-in-the-dark bracelet or necklace, or something flashing on their costume.

Trick or treat in familiar, friendly neighborhoods. It’s a good idea to stay away from unknown areas – stick to places you know!

Wear comfortable shoes that fit well! While the 3-inch heeled, sparkly go-go boots that don’t quite fit are just precious, you will avoid lots of whines and winces with well-fitting shoes. Trust me on this one – I have walked this path before! Save the clunky robot feet for the party.

Plan a bathroom break, and make sure the costume is… accessible. I have also learned this lesson the hard way! Remember that scene in “A Christmas Story”? “I can’t put my arms down!” Yep. Been there, done that.

Choose a treat sack that is easily toted. It is easy to get sucked in by the cutesie Halloween bags on display in the stores, but there is potential for an unpleasant experience when your sack is too heavy (Moooommmmmm – carry this!), too small to hold all the confectionary goodness, easily ripped or broken, or has any protruding parts.

The same goes for props – make sure they are not sharp. Swords, daggers, large and awkward items can become very dangerous if the child trips and falls on them. Though they add the icing to your child’s costume, they will be ditched or broken early into the evening.

Use common sense when it comes to local weather and costume type. If necessary, keep children hydrated and cool; or, on the flip side, make sure they are warm enough in colder climates.

Stick to the sidewalks. Do not let your children run across residents’ lawns. Not only is it disrespectful, but in the dark most obstacles (sprinklers, hoses, rocks, lawn gnomes) are not visible.

Listen to your child’s cues. You may have mapped out and ambitiously planned a marathon route under the guise of “more loot for the children”, but if your little one is getting tired, cold, or just plain over it… go home!

Have a Happy and Safe Halloween!!

He sleeps in this costume...

My warped daughter