Tag Archives: communication

autism visual strategies

Two Simple Visual Strategies You’ll Use All The Time – via Behavior Communicates

Posted on by

I recently ran across a brilliant video from Carla Butorac with BehaviorCommunicates.com that teaches two simple visual strategies that help remind us as parents and teachers to cut the verbal and go visual with our children.

If you find yourself telling a child to do something over and over and over (my son) and they don’t comply, you need to go visual and SHOW them!

This video illustrates two simple examples of visuals you can use in the classroom or at home. The first is called FIRST and THEN; the second visual is called a token board.

Take a look at the video to see what this looks like!

I can’t wait to employ these ASAP to help Justin stay on track, especially since I homeschool. Give them a try and let me know how it goes by commenting below or posting to the SOA Facebook page!

You’ll also want to head over to Carla’s website, BehaviorCommunicates.com, to learn some more amazing tips like how to teach a child with Autism to play!

autism wandering child

7 Vital Tips for Autism Wandering Prevention

Posted on by

My son was 18 months old. He was standing next to my bed, humming, as I was folding laundry and separating the piles. Then he walked out. In the time it took me to fold a pair of jeans, the child had walked to the other end of the house, found my keys, figured out which one was the car key (!), went outside, opened the trunk, and climbed in.

When he was in First Grade, I dropped him off at school, walked halfway to his class with him, then went on my merry way after kisses and high fives like usual. It just so happened that I forgot something from the house that day. Coincidentally, I also needed gas and went left instead of right, passing the school once again. About four blocks from the school, in a direction I normally never would have traveled, was my son, walking with his backpack and singing, without a care in the world. He apparently walked right out of the building after we parted in the hallway, and the teacher assumed he was absent that day. No one knew! Imagine what could have happened if I had turned right like I always did!

Here are 7 tips if your child is prone to wandering

  1. Safety-proof your home. Home should be a safe haven. In addition to traditional childproofing for small children, you will have to take some extra measures for your child with Autism.
  2. Install door alarms. Many children with Autism are prone to wandering. Alarms offer great back up protection.
  3. Arm your child with a form of communication. Whether your child is verbal or non-verbal, communication is a challenge. Create a visual safety book for your child with key questions and answers he or she may be asked in an emergency situation. Practice, practice, practice!
  4. Get to know your neighbors. It’s a good idea to introduce yourself and your child to your neighbors. You can explain what Autism is, along with some of your child’s behaviors that would strike other people as odd. This way they will call you instead of the police, or help direct your child home if found wandering.
  5. Register your child with public safety. Contact your local police precinct, fire department, and hospital and register your child with their database of special needs families.
  6. Use social stories. Teach your child how to handle emergency situations like fire, burglary, strangers at the door, when someone is hurt, and calling 911.
  7. Get QR Code iD apparel for your child and subscribe to their website.

What is QR Code iD?

People who have Autism, cognitive disabilities or other special needs or health issues may be unable to state personal information such as name, phone number, address, medications taken, where Mom and Dad work, issues peculiar to that day, the hotel where the family is staying on vacation, etc.

If your child is lost or wanders, rescuers need to know who to call, and how to help.

QR Code iD creates a way to put this information in one place. This information is accessed from any computer browser, either by entering the URL manually with the computer keyboard, or by scanning a QR code printed directly on the child’s clothing, both of which will take you to the client’s non-secure homepage. This page displays all the information that a loved one wants someone to know when finding the child. This information can be updated REAL TIME!

QR Code iD commissioned Special Needs Artists to create beautiful artwork to put on shirts, buttons, key chains and other products that have QR codes on them. These talented Special Needs Artists will be discovered and contracted to contribute original artwork for our products.

Membership is only $29.00 a year for this invaluable service. I highly recommend it!

Use “spirit 15″ when you check out for 15% discount through July 4!

Do you have any stories of your child wandering that really frightened you? What did you do? Share your comments below or post them to the SOA Facebook page!

ssi

Guest Post: How to Apply for Disability Benefits for an Autistic Child

Posted on by

Image courtesy of ssa.gov

The Social Security Administration (SSA) does recognize autism as a potentially disabling condition; however, your child must be severely autistic in order to meet the SSA’s eligibility requirements. This is because many children who suffer from more mild forms of autism are able to function at a nearly “normal” level socially and academically.

Children with more severe forms however, do require significant supportive care, which can leave you financially strapped. Social Security Disability (SSD) benefits can give you the financial resources you need to ensure your child receives the consistent support and attention he or she needs and deserves.

Supplemental Security Income

Children who meet the SSA’s eligibility requirements receive benefits through the Supplemental Security Income (SSI) program. SSI is a need-based program, which means it has strict criteria regarding financial status for children to qualify. In other words, even if your child suffers from severe autism and meets the SSA’s definition of disability, he or she may not meet the financial eligibility requirements for getting SSI benefits.

The income and other financial resources you and your child have available will be thoroughly reviewed by the SSA, and must be very limited in order for your child to receive SSI benefits. The calculation of income and resources is fairly complex, with some sources counting and others not. To learn more about SSI financial criteria, visit: http://www.socialsecurity.gov/pgm/ssi.htm.

Medical Eligibility for SSI

For your child to be found medically eligible to receive SSI benefits, he or she must be severely impaired. To prove severe developmental impairment, you must have substantial medical records documenting specific information, including:

  • Severe limitations in interacting socially
  • Pronounced communication deficits
  • Inability to engage in age appropriate activities that require imagination
  • Very limited involvement in a broader range of interests and/or activities

You must also have the following information well documented in his or her medical records:

  • For children between 1 and 3 years of age, a pronounced limitation in at least one of the following areas:
    • Fine motor skills
    • Communication and/or cognitive abilities
    • Age appropriate social functioning
  • For children between the ages of 3 and 18, severe limitation in at least two of the following areas is necessary:
    • Communication and/or cognitive function
    • Age appropriate social functioning
    • Inability to provide age appropriate self care in everyday activities
    • Pronounced difficulties with concentrating, remaining focused and on task, or in completing tasks at a reasonable/normal pace

Medical Evidence and SSI Eligibility

The documentation in your child’s medical records must meet certain standards in order to prove the criteria listed above. You must work closely with your child’s doctor to ensure the right tests have been completed to satisfy the SSA’s evidentiary requirements. You may also want to consider seeking assistance from a Social Security advocate or attorney who is familiar with handling autism disability claims.

The Application Process

You can begin the application process by contacting your local SSA office and obtaining a copy of the Child Disability Starter Kit. You can also get the kit from the SSA’s website.

The kit will tell you how the application and review processes work and what information you will need to complete the SSA’s application for benefits. Required information includes your child’s medical history and school records. Additionally, as SSI is a need-based program, you must present the SSA with financial records as well.

To finalize an application for SSI benefits on behalf of a child, you must participate in an interview with an SSA representative. If you have a caseworker from family and social services with whom you work, he or she can arrange the SSA interview appointment for you, or you can contact your local SSA office directly to make an appointment.

Article by Ram Meyyappan
Social Security Disability Help

For more information on Autism and Disability, please visit: http://www.disability-benefits-help.org/disabling-conditions/autism-and-social-security-disability

 

autistic adults workplace

Guest Post: Autistic Adults in the Workplace

Posted on by

More autistic adults are entering the workforce than ever before and with it the number of resources benefiting both employees as well as employers is growing. Not only are these autistic adults entering the workforce, they are are thriving, and this may be a direct result of the growing network of support for those with autism. With growing awareness of the different types of autism and more advice it has never been easier to be an autistic adult in the workplace.

  • What Kind of Autism? – The first thing you need to know is that autism is known as a ‘Spectrum Disorder’, meaning that autism can range from high functioning to severe. Sometimes it can be difficult to pinpoint as symptoms aren’t necessarily the same even with the same diagnosis, so it’s always best to have an open flow of communication between employer and employee so that both parties understand the specifics and the best way to handle them. Different skills and abilities will affect how they integrate into the workplace. If communication or social capabilities aren’t strong, autistic adults may prefer a quiet working environment rather than a busy office; some may not mind working with others but may have difficulties with changes and disruptions.
  • What Challenges are Commonly Faced? – While entering the workforce can be a challenge for everyone, for autistic adults they face a tough transition due to communication and social struggles. More common problems faced by autistic adults include:
  1. Difficulties adjusting to the working environment, especially if the workplace isn’t used to the needs of those with autism.
  2. Misunderstanding the emotions of others and responding in an inappropriate manner.
  3. Difficulties understanding instruction and changes in the routine.
  4. Behaviors that are obsessive or repetitive could disrupt the balance of the working environment, especially amongst other co-workers who aren’t used to or sensitive to the needs of those with autism.
  5. Processing sensory matter can sometimes interfere with work performance.

Fortunately, both employees with autism and their co-workers can overcome all of the challenges they may face through training. By researching training programs and support groups, employers can create a working environment of equals. Autistic adults can also look to improve their skills for a working environment the same way. It’s all about working together to create a professional and supportive working environment.

Thriving in the Job – With the right support and facilities autistic adults can thrive in their employment. There are many autism support organizations out there to help autistic adults find appropriate work placements as well as sourcing employers whom understand their needs. It’s important for those with autism to work in an environment where they are not discriminated and that meets their needs and capabilities; so it might be worth considering for an autistic employee to continue in a job skills support program while they are employed, to work out any communication or socialization issues.

This article was written by A. Elliott; a writer with an interest in autism awareness. She occasionally writes for Voyage Care, providers of autism care and supported living.

Intro to NVC for Asperger’s Teens and Adults

Posted on by

If you are a teen or adult on the Autism Spectrum or a parent or professional that engages with someone on the Autism spectrum, you may be interested in how the Social Skills practices of NVC can serve you.

My new friend Bob Yamtich is an Aspie adult who is trained in a social skills process called Nonviolent CommunicationSM (NVC). He has shared this process at Asperger’s support groups in the San Francisco Bay Area and many people shared how much it contributes to them in their communications.

He is visiting Atlanta and offering an introductory Tuesday, June 19, from 7 to 9 pm at the workshop space of local NVC trainers in Tucker. It will be will be a combination of mini-lessons, live modeling, and active practice will help participants get an introduction to Nonviolent CommunicationSM. Bob invites teens and adults on the autism spectrum, and professionals and parents who work with people on the spectrum.

Some great things included in this workshop:

  • Mini-lessons include distinctions between needs and strategies and between empathy and sympathy
  • What clues can we use, both cognitive and feelings-based, to connect to what we and others care about?
  • Learning self-connection, using logical abilities to hear what is important to somebody, and developing authentic self-expression

So what the heck is NVC?

I absolutely love the description on the site of local GaNVC trainers, Sacred Space:

What is unique about Nonviolent Communication (NVC), beyond other restorative and life-enriching tools, is that it gets us out of our stories — the stories that we’ve already told over and over to no avail to deaf or disinterested ears, without relief. NVC moves us beyond relating what’s happening to us via analysis, blame, criticism, evaluation, or judgment — beyond stories based on verbal violence. NVC helps us address what’s alive in us today … this moment … so that our histories don’t continue to overshadow and dictate our present.

The tools of Nonviolent Communication help us reach the frustrated needs behind strong feelings and the stories. NVC connects us with others through attention to the universal needs that we all share, thereby fostering empathy. NVC fosters understanding, genuine connection and the resulting opportunity to jointly co-create strategies for resolution that can address the needs of all concerned. This practice can help assure that all voices are valued and heard before strategies are formed.

I am very excited to learn more about the connection Bob has discovered between NVC and helping those on the Autism Spectrum be more in touch with their needs and feelings. I know this knowledge will help me in my training programs for Emergency Responders.

If you are local to Atlanta and wish to attend this workshop, please RSVP to Bob at bobyamtich@gmail.com.

Download the flyer here for more information, or to print and share.

I will be posting a follow up regarding what I learned, so look for that soon!

How Communicating With My Child Helps Everywhere Else in My Life

Posted on by

Do you know how many times I still communicate with my son in the same fashion that my own mind processes and regurgitates information? I can jump from topic to topic getting distracted along the way (squirrel!), all the while murmuring snide remarks and sarcastic jokes under my breath about something funny I just noticed. Somewhere, embedded within my ADD spiel, lies an actual command for him to follow.

After all that, I find myself frustrated and shocked that he’s saying, “What?” to the very first sentence that kicked off the whole monologue. He heard nothing past that!

This type of spastic conversation is fine with my daughter, who follows every tangent and sarcastic comparison with uncanny speed. She’s even a step ahead of me at times! But it’s another story with my son. Another plane. Another universe.

I briefly touched on the differences in how my son processes information with my Hardware Store for a Loaf of Bread story, but I wanted to expand on it to include a deeper perspective: the way I have used this understanding to routinely communicate with others around me. Especially in the business world.

Have you ever asked someone for the status of something and received a return email that wandered all over the place but still left off some vital information (kinda like the way I talk sometimes)? How hard is it to dig through someone’s stories, excuses, and unrelated or irrelevant statements only to find that you overlooked the actual information you needed because it was buried “below the fold”?

How about looking over a proposal that has the price mixed in with the benefits, solution and problem… product features are listed inconsistently with irregular bolding and capitalization… I can’t.

I used to be able to follow those serpentine-like speeches from others and would often write in the same manner, (if a train was traveling at x mph and left he station at 6:15 in Austria…) but now I’m much more cognizant of how I can dance around the point I need to get across if I’m not careful.

Because of the way I need to speak and write for Justin so that he can understand what is being communicated to him, I have learned to carry that into other aspects in my world. I ask myself if the words I’m using are necessary to the sentence I’m typing. I remind myself to simplify. I am intentionally clear and concise.

“You can have the children on the weekend of the 13th.”

“The following sizes are available for your website banner ad.”

“These items are still needed in order for me to create your website.”

“I can train your department on the 15th at 4 pm or the 18th at 11 am. Please let me know which date works for you.”

Occasionally, I forget to include some customary small talk when I’m communicating, which isn’t always optimal, either. I’m not a robot and I never mean to be rude! But for the most part, all of my clients have remarked on the smooth process and clear updates they receive in my emails or proposals. Stopping and asking myself how my son might interpret something helps me stay on task in my communication goals with others. Sticking to facts in a polite tone can also evade arguments that some people try desperately to engage you in, by the way :)

As far as my fast-paced brain at home goes, at least I know now that when my son asks for clarification on the second word (and I’m already into the tenth sentence) it does not mean that he’s tuned me out or is choosing to be non-compliant. It means I need to slow down and finish one complete thought in a clear way before moving on. What a great lesson.

What about you? Are there new ways that you have learned to communicate from your child with Autism? I’d love to hear your comments below or on the SOA Facebook page!

[Guest Post] I See What You Are Saying

Posted on by

“I see”, he said, “I see exactly what you mean.”

“No you don’t”, she answered, “you haven’t listened to anything I’ve been saying and you have no idea what I am talking about.”

And in just a few short sentences, you have the beginnings or perhaps, the continuation of a disagreement. Could be about something easy like where to go for dinner, or something of more import like getting married.

But whatever sort of subject it is, when the conversation starts going in this direction, you know it is not going to be long before there’s a real problem in communications.

So what’s the big deal with communications between people anyway? How come my friend, my BFF, my bro, my significant other doesn’t get me? Why doesn’t anyone understand me, I look at my lips in the mirror and I know I am talking but nobody is getting me.

We All Understand This

These are thoughts most of us have had at one time or other. Maybe not everyday, maybe our daily lives don’t revolve so much around communicating with other people so we might not run into this situation on a daily basis. But sooner or later, it’s going to come up. And it’s going to be a real issue in our lives.

But why? Why is this sort of issue so prevalent in our world? You would think that with so many different ways to communicate with each other, between every sort of mobile device imaginable, a hundred different social media websites and apps and snail mail and texting and phone calls, how come this issue of understanding is still happening?

We’re Exactly the Same – Except We’re Different

The answer is simple and complex at the same time. Like so many of the great truths of our world are. But here it is in a nutshell, each of us has our own private communication system that we have spent years developing and none of those systems is the same as any other.

We have each developed our own view of what the world is like to us. We have each attached a meaning to a particular piece of communication and each of us is positive that our way of seeing things, our way of understanding things, our way of organizing the world sensory input we get from the world around us is the right way.

And because each of us is operating from inside our own system of communication, using the set of symbols we have developed for ourselves, that is how we understand the world to be.

All Is Not Lost

Now this is how it is in the most primary sense. There is often a lot of overlap between our individualized communication systems and we can share understanding and ideas and dreams and color schemes and lots of other things with lots of other people. But truthfully, individualized communication systems are like fingerprints or snowflakes, no two of them are exactly alike.

Take the example from the first couple of sentences where he is saying ‘I see what you mean” and she is saying “You aren’t hearing what I am saying” and when you think about how each of them has their own individualized communication system which they use on a regular basis, you can understand right away where at least one of the issues is.

He is thinking about seeing and she is thinking about listening.

Kind of like one of them is watching the TV with the sound off and the other listening to the sound but not watching the screen. And then trying to describe to the other what their individual experience is.

An almost impossible task.

But if they were to simply go into the room where the TV is and watch and listen together, their experience would be a lot different. Maybe not perfect because we each focus our attention differently, but certainly a whole lot easier than the other way.

Each person has their own way of interpreting the world around them. Each of us has developed our own organizational scheme for what we pay attention to and how we show that we are paying attention. Whether, we are male, female, teenagerish, a baby boomer, autistic, American, German, or any other way of deciding who we are, we each have our own way of communicating with the world.

When we interact with other people and understand that we are right in what we are saying and understanding and that they are also right, our days become much easier and our hearts become filled with a lot more kindness and tolerance and love. Not just for other people, but for ourselves as well. And that would make our days totally fantastic.

Michael Shook is a personal development coach specializing in success and authenticity. He offers daily messages of light and love for everyone via ALifeOfLight.com. But for readers of the Spirit of Autism, he is also offering a free personal coaching session.  Click here to read more and sign up for your free session!

Spring Fever – Time to Get the Body Moving!

Posted on by

I am learning from my mistakes. Hey, that’s better than continuing a pattern for an indefinite amount of time, unwilling to look at what may or may not be working, right?

My son, being an unschooler for a little over six months, is very much out of shape. Oh, I know the reason. He spends the better part of his day programming video games (not playing them – WRITING them!). Because of his obsession and brilliance, he currently isn’t interested in joining the rest of the world.

Without turning this into an unschooling article, there is a certain degree of “deschooling” a child will go through when first realizing they are not being forced to memorize things they have no interest in. Picture having been restricted from a certain food group for years and years and suddenly you are told you can eat whatever you want WHENEVER you want – what do you think you would do? Eat all your favorite foods to excess, most likely! Then your body would realize it could have them at any time, and the pendulum would start forming a natural balance – you would find a nice rhythm to your eating. By the way, your body is way smarter than your fad diet, but that’s a post for another day!

The situation

Here’s the missing key in my house right now: my son will spend hours programming games and then get these uncontrollable bursts of energy that have no choice but to be released in the fastest and loudest way possible. He usually shapeshifts into a whirling dervish and runs the length of the house several times, screaming and hitting everything in his path. Not angrily, just energetically :)

Sure, his body is taking care of the regulation of this energy, but not in a productive way. Typically this will result in dogs or sister lashing out at him for inappropriate agitation, followed by the lowering of his self-esteem because he doesn’t understand what everyone’s so upset about.

Having done a successful Fitness 4 Autism program with him in the past, I am kind of ashamed that I let things go this direction for so long. At times I switch into survival mode, when I am balancing a ridiculous amount of things on my oversized, superwoman plate. But that’s okay, all we have is the now and here’s what I’m committing to:

The solution

Short chunks of regular movement breaks. One of my greatest motivation tools for Justin is a timer. Whenever he is resistant to any activity (tooth brushing, taking out the trash) I turn it around and make it a game. I tell him he’s not faster than me, and we have a friendly race doing whatever it is that needs to be done. So we will set a timer and perform animal crawls, star jumps, and similar short bursts of full body movements. Functional exercises for short periods of time are great for everyone, not just children on the Autism Spectrum!

Family field day. Sandbell tossing, hurdles, jumps, even sack races… there is nothing wrong with a little family competition! We’ll even get the dogs involved (Malamutes LOVE to pull things!). I am making the ribbons tomorrow – very excited!

Replace the mini trampoline. It’s been a while since our old one broke. Why have I never replaced it?  This is a good object to always have available to alleviate any short bursts that come unexpectedly.

Weekly yoga. There are so many benefits to practicing yoga, especially for Autism. We both loved doing this in the past – once again it’s funny how bad habits seem to have much easier “sticking” power than things that are good for us!

Exploring new parks. We are very fortunate to live in a county that has over 120 parks and recreation centers. Why are we sitting at home? Time to say no to some of those freelance clients that need things yesterday, turn off Law & Order (love me some Vincent D’Onofrio!), put the iPhone on airplane mode and go PLAY. We can even make a park rating document and map – why not turn it into “research”?

How does regular movement really help?

It’s been proven that children (and adults!) perform better after they’ve moved around. Regular physical activity helps your child:

  • Maintain focus for longer periods
  • Feel better about himself and his abilities
  • Put multiple commands together with cues
  • Confidently participate in new things
  • Get in better shape

Fitness boosts confidence, independence, and self-esteem, plus it teaches goal setting. Speech targets, communication, and behavioral targets can also be incorporated into your daily movement breaks. Remember, no expensive, large equipment is needed!

This is my Spring commitment to my children and myself. I set an example daily with the intense early morning workouts I do at home; however they never see me simply moving for fun, other than walking the dogs.

Join me in this Spring movement… “movement”. Remember, sharing this goal with your child will benefi­t the entire family – it sets everyone up for long-term health and fi­tness. Tell me how you plan to move more with your child by commenting below or sharing it on the SOA Facebook page! I love fresh ideas!

“I’m funny how? Funny like I’m a clown, I amuse you?”

Posted on by

Sarcasm: Remarks that mean the opposite of what they seem to say and are intended to mock or deride.

Add irony, hyperboles, understatements, metaphors, oxymorons, or the anticlimactic punchline – no, this isn’t a Language Arts pop quiz. These are the things not understood by my Autistic child, who lives in a literal world.

Last night we viewed a commercial for a new movie in which the main character exclaimed, “There is no such thing as—“ “DEREK!” his wife interjected. What my son heard was, “There is no such thing as Derek,” and promptly looked me in the eye and asked, “So the Derek in my class isn’t real?” Oh boy : )

In a household where sarcasm is spun more intricately than a debate between Alan Rickman and Joe Pesci, I find it extremely ironic (and entertaining!) that my son doesn’t comprehend the figurative language. Phrases like, “I laughed my head off”, “She cried her eyes out when she watched that episode”, or “Don’t blow a gasket, it’s just a video game” are lost on him. I certainly have to think twice when he asks if it would be cool to see him jump from the chair, over the dog, and onto the coffee table and I reply with, “Sure – that’s not dangerous…”

Before stumbling upon the realization that Autistic children can have trouble interpreting sarcasm, I wondered why classic momilies such as, “I’ll kick you into next week” and “Back off the TV or you’ll burn your eyes out” would elicit a mortified response from the boy. Can you imagine how confusing your universe would be if you took every message literally? No wonder I never got the desired result every time I reminded him to keep his hands and his feet to himself. In his mind, that meant keeping them attached to his body. Duh, mom!

I also used to think he was just being difficult when I would tell him it was his bedtime and he would immediately retort with, “It’s NOT! It’s 8:57!” Rounding up doesn’t exist, nor does approximation. A couple always means two and a few always means three when I am talking to him. And he holds me to it! We’ve also had many arguments arise when he would ask me how much longer until dinner and my answer was something like, “Not much longer” or “twenty minutes or so”. Frustrated, he would repeat the question until I answered in a way he understood. I had no idea that he simply doesn’t process vague statements.

My daughter and I are the complete opposite of him – we exaggerate for humor, paint mental pictures of the ridiculous when trying to prove a point, and typically function in a “go with the flow” state of being. It can be challenging to stop and alter how we communicate with him so he gets it, but I now see the importance of it! To him, we are sometimes speaking another language. He already feels left out being the only male; the last thing I want to do is isolate him further when I can simply adjust the way I phrase something.

When my daughter and I are laughing hysterically, shooting rapid-fire examples of “Imagine if” jokes and he either corrects us or chimes in with something completely irrelevant, we have learned to appreciate his beautiful mind. It is quite a gift to have such a different perspective presented to us on a daily basis.