Weekly Autism Tips for Emergency Responders: If I Need Help

Posted on July 5, 2015 by SpiritOfAutism

My son wearing his unique QR code at the Chamblee fireworks in 2014.

My boy is a wanderer. After having a girl first, one that was nearly always attached to my side, I was not prepared for the terror of repeatedly having a child go missing in the blink of an eye.

Now he’s 13 years old, 7″ taller than me and weighs 210 pounds. He doesn’t wander often. In fact, I can’t seem to get him to wander… away from his computer, that is However, we are still prepared; despite the repetition of safety-based social stories and the fact that he prefers to stay in his room… there is always a chance he will impulsively go seek something outside and get caught up in it until he’s no longer sure where he is. There are also large events that we sometimes venture out to, when the odds are stacked in our favor and we have all our tools to make it a successful outing, that breed great opportunities for him to be lost in the crowd.

My son is verbal, but when something happens to him that deviates at all from his normal routine, he shuts down. He knows his name, address, and phone number, but when he’s in distress all he can process is what’s happening to him at that moment. He doesn’t think through asking critical questions or seeking help, he either shuts down exactly where he is or he goes. Like Forrest Gump goes – no idea where he’s going or what or who he’s trying to reach, he just goes.

So how would you respond to a 210-pound, stocky man child (that sometimes wears diapers because of crippling digestive and bowel issues) that cannot tell you his name, where he lives or what’s wrong?

In our case, you could scan him! (What?)

As a parent, I have researched myriad IDs and tracking devices for my child. I’m glad to see so many options available now – so many other parents stepping up to the plate and inventing products to keep their children safe. My son has extreme sensory issues (and I mentioned he’s a 13-year old boy)… he rarely keeps CLOTHES on. A clunky tracking device on him would not be there long.

If I Need Help has saved our bacon on more than one occasion! First of all, the creators are super cool, funny and awesome parents who, like many others, had a dire need to keep their own child safe. Secondly, the QR code patches and clothing were easily tolerated by my son! He actually loves the idea of having his own unique “code” and wears it with pride.

“I’m safe in here, right, Mom?”

We didn’t make it to fireworks this year. The ones that went off in our neighborhood ALL DAY really put him into a bad sensory state. Together, with our terrified, Thundershirt-clad husky seeking shelter in the tub, we focused on calming routines instead of venturing out to the city’s festivities. ‘Twas quite a night. Last year, however, we went to the City of Chamblee fireworks and had a great time! Donning his QR code on a Minecraft shirt, our first stop at the festival was the police tent, where I introduced my son, explained he was Autistic, and told officers if they spotted him anywhere without me, they should scan his code with their smartphone. The QR code gives instant access to my son’s emergency information, I am able to change anything in his profile REAL TIME based on the scenario, and the entire thing can be emailed to searchers if he went missing. It is his unique ID, a way for him to communicate when he isn’t able.

One time, he was playing with the hose in our front yard and his sister apparently told him to get lost. Being literal like he is, he did just that. In the blink of an eye he was gone – no shirt, no shoes and soaking wet. It took a neighborhood search party, DeKalb PD and a lot of faith that day, but I got my son back safely.

He wasn’t wearing a shirt, so how could the QR code have helped? If I Need Help has some NEW products – they now have custom Dog Tags and ID cards that have the name, number and additional info printed on them along with the QR code. People who are more independent like these, but they are also good for people who do not keep their shirts on.

If I Need Help Quick-start Guide

With the free sign up you can create a profile, edit it live in real time, send the profile to other caregivers, and print out your own code. Many people are printing their codes, laminating them and taping or glueing them to their phones, devices or anything else they keep with them regularly.

If you’ve taken my Autism training course, you already know some signs and behaviors that will help you identify that someone may need help. Keep your eyes open for anyone wearing or holding a QR code on their person and don’t be afraid to SCAN IT! You may just be saving a life.

How My Son Leveled Up in New York

Posted on January 10, 2015 by SpiritOfAutism

Happy New Year! A week ago we successfully and smoothly returned from a week in New York and New Jersey. Somehow we survived the 15-hour drive (no stops other than to gas up and stretch) each way with grace. And without killing each other.

So what do you get when you combine a single mom, a rental car, two special needs teens, a long-ass drive and a week of new experiences?

PROGRESS! That’s right, my (not so) little man leveled up in innumerable ways. This was my true Christmas gift and I am beyond astounded and grateful. Here are some of the awesome discoveries and moments of progress that occurred:

An Eye for Beauty

Our initial journey took us from Atlanta to New Jersey via I-77 and I-81. We were in the middle of Virginia at the PERFECT time of day and saw the most pristine and beautiful skies. I had never before heard my son describe things that were beautiful to him – I wasn’t even aware that he had an eye for such things. Not only could he not stop talking about the views and the heavenly cloud formations, but he took more than 200 photos with his iPhone! This interest grew exponentially as we traveled over various bridges from New Jersey into New York throughout our vacation. He captured scenes from a really unique perspective… perhaps a higher resolution camera is in his near future!

Embracing His Goofiness

J-Bird developed another related camera skill during this time – taking unflattering selfies. He made some of the strangest faces and proceeded to take selfies and assign ridiculously appropriate and hilarious hashtags to accompany them. And they say people with Autism have no sense of humor. Incorrect. It was glorious to see him be unapologetically himself and make others genuinely laugh in the process.

Independence Day

This may seem like no big deal to many, but any little steps toward independence are celebrated heartily in our house (or hotel room, in this case). Perhaps it was the new surroundings that encouraged him, but for the first time my son was able to wash his own hair in the shower. This success seemed to feed his confidence and he began dressing himself as well! It can be so challenging as parents to watch our gifted children perform amazing and independent feats in other areas, such as computer programming, yet struggle with daily hygiene tasks. This was huge.

New Communication

The morning of our hotel check out, my son and I went down to the hotel restaurant for breakfast, as we did most mornings. However, on this day it was downright MOBBED. It was New Year’s Day and there was a huge Asian tour group there as well as in influx of new guests from the night before. People were swarming around like bees, many of the menu items he had grown accustomed to were sold out, and it was LOUD. I repeatedly asked him to grab a plate from the food bar so I could try and get the last two pieces of bread for him to toast and he wasn’t moving. Instead of his normal response to such an overwhelming environment (verbal stimming, complete shutdown, crashing into me, etc.) he simply looked at me and said, “I feel really uncomfortable around all these people.” WHAT? Who was this well-spoken young man before me? I was SO proud of him. I immediately told him that I understood and ushered him to a table. I plugged his headphones into his iPhone and told him to watch a video while I navigated around the food area and got him what he needed.

Why So Many Level Ups?

This is all great news for us, and I’m sure you can relate to some of them or have hope for similar types of progress in your home. But it wouldn’t be fair to just share our success… here’s what I think led up to them:

Time Away

This was our first family vacation in many, many years. Since we acquired our huskies. It was long overdue. Taking time away from the “chiseled in stone” daily rituals can sometimes provide a boost in new perspectives and abilities. I’m so glad I created this opportunity for us to get away. Keep in mind, though, that we quickly established some new routines while we were there, so it’s not like we went from the daily grind to complete spontaneity. Little things like going downstairs for breakfast together helped him stay focused and feel safe. The one morning I took the kids to the diner instead of just him and I having our normal breakfast created some real problems for him, so I had to really ascertain from his body language what should be routine and what can be free and spontaneous activity. Which leads us right into the next one…

Listening

I acknowledged that our quaint breakfast together was important to him each morning, so we went back to that for his sake. I was constantly watching for cues when it came to what he could handle and when he had enough of something. In one situation, he was in full meltdown mode and we were not in a place where we could leave, so I had to adapt and overcome! I created a small, quiet corner for him in the museum store and let the girls go off on their own for a bit while I stayed with him. These little things helped him feel heard and understood, and that made it easier for everyone.

Being Prepared and Being Flexible

I tried to think of all possible scenarios and issues when it came to planning this trip. I even planned to NOT plan some days so we could survey everyone’s mood and not be locked into an itinerary of sorts. So of course it was great for me to have familiar attachment items with us – even when he said he didn’t want to bring them – as well as many of the tools I mentioned in previous posts for travel. But some things just turn out differently no matter how much planning goes into it. For instance, I bought a travel charger for my laptop and brought several DVDs for him to watch in the car during our drive. Guess what. He wanted to watch live streams on YouTube. It’s a good thing I found out what he was doing when I did, because I had to call our wireless provider and purchase a wildly larger data plan so we didn’t have overage penalties!! But this kept him occupied when he wasn’t taking selfies and scenery photos. On the flip side, he didn’t want to bring his Mario plush but I ran back in the house and grabbed it at the last minute. This item was by far the most used throughout the entire week.

Encouragement

When I learned of his new photography skills I encouraged and complimented him. And they were really good, too! Sure, it was a bit much to get shown each of the 200+ photos every time he snapped one. Many of them were extremely similar. But I looked at them all and found something unique to say about each one. I also encouraged his independence but did not push him into something he was not ready to do or uncomfortable with.

As a result of these decisions or actions on my part, my son achieved some awesome new skills… something we may never have discovered if we didn’t take a crazy drive to New York.

Over to You…

In what ways can you shake up your routine a bit and see how your child responds? You just might be surprised at what’s possible with a little preparedness, flexibility, listening and encouragement!

Holidays and Autism: Help Your Child Stress Less

Posted on December 17, 2014 by SpiritOfAutism

Christmas waves a magic wand over this world, and behold, everything is softer and more beautiful. ~Norman Vincent Peale

As beautiful an image as this conjures up, this isn’t always the same Christmas experience felt by children on the Autism spectrum, especially those with sensory processing issues. Although the idea of gifts, snow and yummy treats sound exciting to your ASD child, the holiday experience can be extremely overwhelming. Rather than soft and beautiful, it could look and sound more like this to your child:

So what can you do to help alleviate your child’s holiday stress? Here are some common causes of holiday anxiety and what to do about them.

Over the top decorations. Flashing lights, musical wreaths, tinsel everywhere… it’s a Christmas wonderland to you but it could be a Christmas nightmare for your child.

Before choosing the blinky, flashy (stroke-inducing) light strings, you can first take your child to the store or to someone else’s home to see how they respond to similar decorations. Get them involved in the process, too! Allow them to interact with the decorations and help choose where they will go. It also helps to decorate in stages over the course of a week rather than having your house suddenly go from the safe haven your child knows to an overwhelming environment.

Family gatherings and routine disruptions. Whether you’re having company or going to a relative’s for holiday festivities, both involve a disruption to the schedule you worked so hard to keep with your child. Visual schedules and social stories can prepare for this disruption and help your child know what to expect.

If you’re having company, make sure your child has a quiet space to retreat to. Explain to relatives and other children that your child is in “quiet time” (not the same as time out!) and will come out when he or she is ready to play again. If the quiet space is your child’s room, consider having a special sign that can be hung on the doorknob that alerts visitors that “do not disturb time” is in progress.

If you’re going to someone else’s home, have an exit strategy! From personal experience I will tell you – DO NOT rely on anyone else for a ride home if your child has had enough for the day. Work with the host to establish a quiet space ahead of time and let the other guests know that regular breaks may be needed for your child. You also may want to pack some back up foods in case you have a picky eater or a child with food allergies. I’m about to experience this with a sibling I haven’t seen in almost a decade. He decided to have a big family ham dinner when we arrive in NY. I have one picky teen that eats four SPECIFIC foods only (none of which are on the menu), one with extreme food sensitivities, and then there’s me, who no longer eats meat or animal products. Should be an interesting gathering

Gift confusion. Does your family put gifts under the tree before the big day? If so, you may find a surprise – your child may open them early, and they may open everyone’s! Prepare your child for family gift traditions. Let your child play Santa and hand out the gifts to all the guests and family members – a busy mind and hands help keep temptation to open early at bay! Also, if your family takes turns opening (not everyone annihilating the packages at once), passing around a special ornament will help signal to your child whose turn it is.

Your child turns into a whirling dervish during travel. Yes, this has happened to me. In fact, before social media was popular, a certain airline actually asked us NEVER TO RETURN when we deboarded the plane. It was insane.

Driving has also been challenging. Although I am more in control of stops, breaks and other issues during a road trip, it can still go awry (and has). Here are some things that really saved my bacon:

Noise blocking headphones for the trip
Personal audio headphones for a handheld game system, portable DVD player, iPad or laptop
Approved snacks and drinks that didn’t contribute to hyperactivity and digestive issues
A visual schedule of what to expect once we arrived and during our stay
A few sensory “fidget” items for him to calm himself with
A nature app, DVD, or CD to play at the hotel at night for winding down
Frequent stops to get out and stretch

Next week I am driving my children to New York/New Jersey from Atlanta. That’s 12-14 hours, depending on food, bathroom and stretching breaks. You can bet your sweet bippy I’ll be packing all of these things and employing many of the tips I’m sharing with you!

Over to you. What holiday tips keep the stress level down in your Autism household? Share by commenting below!

Craptastrophes and Holiday Travel

Posted on November 12, 2014 by SpiritOfAutism

image courtesy of moodrush.de

And so it begins. The holiday season is landing in our laps, but that’s not always exciting when it comes to family members on the spectrum. Ever since an unnamed airline asked us NEVER to return when my son was three (NINE years ago, and pre-diagnosis) we haven’t done much holiday traveling. A small, manageable road trip here and there, but nothing to write to Reader’s Digest about.

Guess what! This year I’m taking my kiddos to New York/New Jersey for the holidays! Crazy, yes? I haven’t been home since right after 9/11 and boy have I been craving good pizza and bagels. Also, my kids’ two internet besties live in the area and they want to meet them in person. Yes, I’ve seen them on Skype video chats, they’re actually real

What’s this have to do with poop? Ha, you may regret you asked. OR, you may be in a similar situation and now you will know that you’re not alone. We’ll see…

If you’ve been following the Blog for a while you may recall that my son suffered four months of diarrhea with “unknown” cause. After some extensive (out-of-pocket expenses!) testing, some genius finally figured out that he had a bowel obstruction. That poor child went through so much when it came to all the tests he was subjected to as well as the final cleaning of the pipes. I, too, became a changed woman in regard to the things I’ve seen and handled.

Since that experience, he’s been TERRIFIED to go. He exhibits avoidance behavior to the max when it comes to this topic. His muscles hold it in by default until the body takes over and results in light “elimination notification” that he’s holding a lot more. He holds it because he knows it will be a difficult and painful experience, which is self-perpetuating, of course – it’s a difficult and painful experience because he holds it. That coupled with the fact that if I’m not home to handle the “paperwork” he feels he has no option but to keep it in.

You can imagine the devastating implications this problem has on any kind of social life (thank goodness Skype doesn’t have smellevision capacity). We have tried every supplement and over the counter medication known to mankind. We have practiced sitting and pushing and routine and ritual and social stories and tricks and negotiations and rewards and punishments. We’ve tried “we can’t go to New York unless you learn how to poop.” But that’s not really fair.

As hard as this is for me, I can only imagine it’s tenfold for him. He knows it’s not the most desirable behavior, because he avoids coming out of his room every time he first has an issue. Or he walks backward (like I don’t know!) away from me to hide his bottom.

Overall, I’m not giving up! I will do what I do – research, experiment, keep soldiering on to make this a much better experience for him. BUT we are traveling for the holidays… so what do I need to consider as far as tools and resources for this situation?

You see, when he does finally go (which takes an Act of Congress and a lot of bribing), it involves a lot of bleach, a lot of wipes, medical gloves, several pair of boxer briefs, a shower, and a lot of, um… compacted product that isn’t willing to go where it belongs when the toilet is flushed. Yeah, it ain’t pretty. Between my poop scavenger hunts from the huskies in the back yard and my poor child’s digestive issues, I sometimes feel like Pyle in Full Metal Jacket (I AM in a world of S**T!).

What do we need to pack for out of town potential craptastrophes? Do they make travel-sized plungers? Should we re-invest in Men’s Depends just in case? There are no “how to potty train your teenager” resources available, unfortunately. I’m not sure what lies ahead (and you probably don’t care to be updated, ha ha) but I want very badly for this to be a fun and successful trip for my son, not to be remembered with any kind of embarrassment or troubles. I imagine I will focus on getting the desired result for him while we’re at base camp each night (the hotel).

Have any of you had craptastrophes after an appropriate age? What helped? How did it affect travel plans? I love hearing from you, so share the poop… I mean SCOOP by commenting below!

Spirit of Autism Web TV Episode 2 – Improv for Autism

Posted on August 17, 2014 by SpiritOfAutism

What’s a fun way for people on the Autism spectrum to learn vital life skills and mind flexibility in a safe and unique environment? Find out on the second episode of Spirit of Autism Web TV , where I interview my good friend Sandy Bruce, founder of Shenanigans!

Thanks for tuning in! Look for the next episode on Wednesday, September 10 at 9:45 pm on AmericanHeartsRadio.com. If you have a topic you’d like to see covered or are struggling with a certain issue related to Autism, drop me a line and I’ll see if I can answer your question on the show!

Puberty, Autism and Emotional Shutdowns

Posted on April 17, 2014 by SpiritOfAutism

“The universe hates me!”

My son came stomping out of his room and collapsed onto the floor, heaving a huge sigh of frustration.

Unfortunately, this is not a new scene in my house, as I also have a 16-year old daughter. ‘Nuff said. But more importantly, puberty and autism can create a vicious cocktail that seems to bring on extremely magnified sensory issues, increased hyperactivity, regressive behaviors, and a whole lot of unexplained emotions. My boy just turned 12, but we started experiencing a profusion of puberty related issues as early as nine.

“The universe is incapable of hating, sweetie. What’s wrong?”

Evidently he had built a statue of his Minecraft skin in one of the game’s worlds and he told me that his friend destroyed it. Minecraft is a unique multiplayer computer game where you learn survival skills and build custom worlds. The creative and building aspects of Minecraft allow players to build constructions out of textured cubes in a 3D world.

First and foremost, I was extremely proud of his ability to articulate to me that he was upset, the reason he was upset, and that he had worked very hard on the statue and it had taken him a long time. This is a HUGE milestone for us! But before we had a chance to begin talking about it, everything started going wrong for him. Everything he touched seemed to break or malfunction. He tried to pet the dogs and they ran away from him. His sister yelled at him for seemingly no reason.

I know from experience that when you have the “everything sucks” filter on, your experiences will follow suit. You know, like when you start out having a bad day it seems that your car won’t start, you spill coffee on yourself, you mess up a client proposal… have you ever had a day like that?

So the first thing I had to do was help diffuse his “universe hates me” perspective, starting with three deep and centering breaths together.

Delayed responses are another typical experience for Autistic children, and once I thought he was in a calmer place (about 30 minutes later), he started crying uncontrollably about the loss of his statue. It was that real guttural crying, too; I felt horrible. I consoled him and acknowledged that he felt upset that his statue was destroyed.

We then talked about choices. I told him he could either play one of his other favorite games (offline) to help get his mind off of it for now or he could choose to talk to his friend and tell him that his feelings were hurt. He could ask him why he destroyed the statue and open the lines of communication.

He had already removed his friend from his Skype list and blocked him from his server! His impulsivity coupled with an intensity of emotions he wasn’t accustomed to had caused him to overreact and shut down.

Once the tears were dry, we played a game called “5 Other Things”. I learned this gold nugget of a coping skill as a teenager and it’s never failed me. The idea is that it’s not what happens to us that causes emotional distress, rather our interpretation of it. For instance, if a person doesn’t show up for a meeting with me I might immediately feel hurt and angry, assuming I had been blown off. This could rapidly lead to a barrage of negative thoughts: “Did they even INTEND to show up? Am I not good enough for a simple text or phone call letting me know? Who do they think they are?!” etc.

“5 Other Things” forces you to step outside of that neural pattern and look at some other possibilities for the event in question. Was there a family emergency? Are they simply running late? Car trouble? Did one of us write down the wrong day?

Naturally, if someone does this sort of thing to you regularly, “5 Other Things” is not the answer… getting a new friend is J

Being that my son didn’t SEE his statue being destroyed (it was simply gone when he logged back in to the server), we looked at some other possibilities:

Did another person playing on that server do it?
Did the game malfunction somehow?
Could his friend have accidentally done it?
Was the site hacked?
Did aliens land on earth and destroy all human forms of online entertainment? (Silly can be good if you’re trying to break neural patterns!)

“5 Other Things” worked! After some investigating (and a proven screenshot alibi of the suspect, ha!) he and his NOW UNBLOCKED friend discovered that the server crashed and the world was restored from an earlier version… before he had built the statue.

What a great learning opportunity this was for us! When puberty, autism and emotional shutdowns occur, we now have a blueprint:

Take three deep breaths together
Encourage him to share what is wrong, and praise him for being able to name it
Help diffuse the “everything sucks” filter or mindset
Acknowledge the feelings he is experiencing without judgment or criticism
Play the “5 Other Things” game – without fear of getting a little silly!

Some Mornings Feel Like 17 Levels of…

Posted on September 5, 2012 by Debi Taylor

The other morning, before I even had a chance to hit snooze at 4:35, I woke up to this:

Click to hear (speakers DOWN!)

It proceeded for four and a half hours, until I left for work.

Trying to get out of bed, my son was standing over me making these very loud, bizarre noises.

Getting the three malamutes leashed up and ready for their morning walk, my son was trying to ride them and screamed the noises in their faces.

While I was preparing his breakfast, he would sneak up behind me and scream the noises so I jumped and spilled his food.

During my entire workout he would jump on my back, grab my leg, stand on my back while I was doing pushups, and fight with the dogs… all while making non-stop noises.

Whilst in the shower he would constantly open the curtain and scream (it echoes! Oh boy… even louder!) the noises.

Applying my makeup.

Getting dressed.

Making coffee.

Packing lunches.

Preparing the dogs’ treats.

Yes, four and a half hours. Of course, I was in rushing deadline mode, not patient parent mode, so I made the situation worse.

As I was leaving for the office, he immediately sat down and began composing beautiful original music on his DSi XL. Huh? Then he had the temerity to say to me, “Mom, it seems like you have your feathers in a bunch today.”

AAAAAHHHHHHHHHHHH!

So what was going on?

I wish I knew. I wish I had a distinct checklist or pattern that would solve for “x” (the noises).

It could have been something he ate or drank before I got up (clearly he was awake before my 4:30 alarm) that caused a reaction.

Maybe this was an extension of sensory-seeking behavior.

Maybe it was verbal stimming due to something was worrying him – a change in a pattern or schedule (he recently had some issues with visitation and his father).

Maybe he was bored.

Maybe he wanted attention.

Maybe he was just having an off day – we all have them. Children with Autism (and puberty!) may not intuitively know how to channel “bad day” energy.

What I do know is this: had I stopped for five minutes and employed one of the tools I normally pull out of my “patient parent toolbox”, I’m sure the morning would have gone differently. I’m not saying the behavior would have stopped completely, but here are some ways I could have redirected him:

Invited him to join me on any of the physical activities of the morning, like the dog walk or intervals (jumping jacks, jump rope, running in place, squats)
Taken a yoga break
Engaged him in a one-on-one activity that he loves (Hangman, Picto-chat, Uno)
Played a sensory game
Had a protein snack
Did an EFT tapping session
Designated a “screaming” area of the house where it’s okay to let it all out

These are all quick, simple ways to break the pattern of the morning. I, on the other hand, became stressed, got aggravated, and let the panic of being late overtake me. I got to work feeling like I wanted to carve out my intestines and strangle someone with them. Imagine how he felt, having all this energy in his body and not knowing how to get it out without getting in trouble!

Lesson learned. Sometimes we have to experience 17 levels downward before we can “level up”.

What about you? Have you seen a behavior recently that made you pull your hair out? What did you do about it? What could you have done differently? I’d love to hear your stories in the comments below or on the SOA Facebook page!

Demystifying Alternative Therapies for Children with Autism

Posted on April 17, 2012 by Debi Taylor

Reposted with permission from Healthism.

For parents of children on the Autism Spectrum figuring out treatment can be tough. The spectrum is vast and children have different symptoms and triggers that require different treatments. There are a number of ways to treat your child’s needs through different therapies – from the way you eat to different activities you do. That is why we’ve contacted the BEST of the best when it comes to Autism specialists to find out more about each treatment. Here is what they had to say:

GLUTEN FREE & ALL NATURAL DIETS

WHAT IS IT? Improving your child’s health by changing what they eat.

HOW DOES IT WORK? Children with Autism tend to have food sensitivities more than food allergies, the biggest offenders can be gluten and casein (casein is a protein in dairy products and gluten is found in wheat, barley, rye, and some oats). Some autistic children have vast improvements on a Gluten Free Casein Free diet (GFCF) while other do not.

Also, a diet of minimally processed, or foods in as close to their natural state as possible, can help some children with Autism. One common symptom of Autism is gastrointestinal (GI) upset because children with Autism often lack, or have very low levels, of detoxification and digestive enzymes. This leads to poor digestion and absorption of food and nutrients resulting in a multitude both behavioral and physical symptoms. Minimally processed or all natural foods contain less potential GI and behavioral triggers which can mean all the difference to a child with Autism.

HOW DOES IT HELP? The first major improvement is an almost immediate reduction in GI distress. The effects vary, but some parents have actually proclaimed to have “gotten their child back” due to the vast improvement in behavior and reduction in autism symptoms.

Also, almost everyone notes a positive change from shifting to a natural diet. A recent study found that autistic children who experienced chronic GI distress had the greatest improvements in behavior and social interaction when compared with autistic children without significant GI distress.

Colleen Hurley, RD is a Wholistic practitioner, Registered Dietitian, Certified Kid’s Nutrition Specialist, and a Master Gardener offering wellness education through services and her website at www.colleenhurleyrd.com.

Debi Taylor, Autism Specialist; www.SpiritOfAutism.org
CRANIO-SACRAL THERAPY WHAT IS IT? Improving Health by Allowing The Breath of Life to Do It’s Job
HOW IS IT ADMINISTERED? Biodynamic Craniosacral therapy orients and magnifies the forces that direct cells to do their job. It has one foot rooted in anatomy, and another in what practitioners call the breath of life that breathes in all of our cells every second. Healing occurs by these forces communicating more strongly, and clearly in a person’s energy field and body and tissue field. It works at the root level of health which is the quantum physics of the body.

The breath of life is the similar to electricity in that it’s used everyday as it breathes and directs each cell. Practitioners do not quite understand how it happens, but with Autism these forces can be blocked by various conditions at birth, in-utero, from genetics, and from environmental toxins. Biodynamic Craniosacral therapy allows the body to show the practitioner what level it wants to work on. It orients towards the forces that are present from conception on, to magnify them to heal areas where the body is less connected to these baseline forces specialists call the breath of life.

When cells and the entire body connect more to these forces of health, the body heals on emotional, mental, physical, and energetic levels. Craniosacral therapy will improve one’s health by strengthening the body’s innate intelligence and a sense of well being occurs.

HOW DOES IT HELP? Some practitioners have had good results with this, as Craniosacral therapy supports whatever is needed at anytime. The affects are direct and indirect. Treatment can magnify other therapies as well as support maximizing the child’s brain development. When children and their parents receive Craniosacral therapy (as both should be treated since they are all in a unit) it supports their nervous system, immune system, and more, as healing happens where it is needed.

It is believed that only the body knows exactly what it needs, the practitioner just holds the proper container for healing to happen. While the practitioner is tracking what is happening with their client, they make sure to “get out of the way” to allow the breath of life to do the job.

Dr. Kate Klemer has been practicing Cranial work since 1986. She has studied various forms of the work. Over the past 10 years she has been training to be a teacher of biodynamic craniosacral therapy. www.drkateklemer.com.
EQUINE-ASSISTED THERAPY WHAT IS IT? Help through horseback riding.
HOW DOES IT WORK? After an initial application and intake process is done, a child may start a specific treatment plan specific to their needs. This will include elements of occupational, speech and language, physical, and cognitive behavioral therapies. While a child may spend up to 45 minutes riding they also work on daily living skills. They are taught the daily care of a horse like grooming and feeding which is paralleled to their own self daily care. LifeStriders Therapeutic Riding Center also makes sure to include sensory integration, so the children are playing games and doing activities while riding.

HOW DOES IT HELP? Many people with disabilities don’t have a normal gait, a common symptom of many children with Autism. When a person is not moving how they were meant to move the brain doesn’t get certain kinds of stimulation. With Equine-Assisted Therapy a horse carries four beats per step, so a child’s brain is getting stimulation they wouldn’t get with their normal two beats per step.

There have also been studies that show that oxytocin, or the bonding hormone, is released during riding. A result of this is an increase in sustained contact. And while the brain is stimulated week after week they’ve seen increased verbalization in most of their non-verbal patients. Many non-verbal students even say their first words during riding, which is music to a parent’s ears.

Veronica Sosa Agnoli, MS, LPC is the Executive Director of LifeStriders Therapeutic Riding Center, establishing LifeStriders as a leader in the field of Equine Facilitated Learning/Mental Health and therapeutic riding.

For more articles discussing tips for teachers, preparing them for college, great resource roundups, and more, visit http://blog.healthism.com/.

Have you used either of these therapies with your children? What have you seen that works or doesn’t work? Is there an alternative therapy you use that we haven’t covered?

Siblings in the Shadows

Posted on April 3, 2012 by Debi Taylor

“It’s not fair! Everything you say is always about Autism, Autism, Autism! You always write about him and put his pictures everywhere!”

My firstborn gets a little sensitive about my website and the training classes, workshops and marketing materials I create. Sure, I can remind her about all the special privileges she receives and the times we go places without her brother. But that isn’t what she wants to hear. She wants to know that she’s valued, unique, and most of all, heard.

Here are some things I’ve learned along the way about how to make sure siblings feel included.

Don’t keep them in the dark. The unknown is scary to children – especially when it’s surrounded by energy that may be tense and anxious. They are extremely sensitive to your feelings, so sugar coating or avoiding the subject of Autism in the home causes more disharmony than protect your child’s feelings.

Additionally, you should be open (in an age appropriate way) about what’s behind certain behaviors and that they are rarely, if ever intentional. Impulsivity is hard to explain, but there are some amazing children’s books out now on the subject of siblings and Autism. It’s a great place to start.

Consistent rewards. It’s easy to get caught up in praising your child with Autism for every mark of progress and milestone. It is necessary. You may be missing the fact that every reward is also being counted by the sibling… and if the score isn’t evened they will remember.

Find a way to celebrate and recognize every achievement from all of your children as special.

This can also go the other way: many times my daughter will feel that her brother doesn’t get a just punishment for something she may have gotten in trouble for previously. Situations like that can indeed be a sticky-wicket, as your child with ASD rarely breaks rules intentionally. Unwanted behaviors still need to be addressed, and it helps to explain to siblings that discipline may be unique to each family member but no one is “getting away with it”.

Sibling-only time. Often parenting our child with Autism requires an unequal amount time and energy for that child. It’s so important to schedule regular one-on-one time with your neurotypical child. Whether it’s a ritual of ten-minute blocks each night before bed or a once a week “girls night out” (in my case it’s my daughter), this time is to be treasured together.

Support and expectations. It’s important for siblings to feel that they are not alone in their experiences. There are many sibling support groups to share their struggles and feelings, but don’t force it. In our case, my daughter had a good time visiting one of our local groups but quickly discovered that being with people that focus on talking about her brother still makes her feel like the world revolves around him. She flourishes when involved in a group that is uniquely hers – an improv comedy troupe, art school, and Dungeons & Dragons are some of her favorites.

Equally as important, do not expect your child to be overly responsible for the child with Autism. Unrealistic expectations can lay an unbearable amount of pressure on siblings. This isn’t a free pass to skirt all family responsibility; check in often and encourage open communication throughout the journey.

What are some ways that you keep siblings out of the shadows and keep things “fair” in your house?

When Connections Are Made

Posted on March 6, 2012 by Debi Taylor

One of the most perplexing characteristics of Autism that manifests in my son is his lack of ability to put together cause-and-effect connections. Because he is so ridiculously brilliant and advanced academically, it is easy for me to overlook typical actions such as burning his hand on the stove and then touching it again without pause, or messing with the dogs, getting snapped at (or even bit), and then repeating the behavior minutes later. He is perpetually surprised by a repeat consequence and often has no idea that he caused it.

Here is a normal evening scene in my house: I’m in the living room working on the computer, my daughter is on the couch drawing, and my son is in his room designing video games on his laptop. Suddenly he gets a surge of energy that MUST be burned off immediately, comes running down the hall and stops an inch and a half from my ear, then lets out a screaming phrase at his loudest volume.

I have had an array of responses to this, trying my best to reprogram the behavior and teach a lesson without losing my composure. I’m not very good at it. From the gentle, “Sweetie please don’t do that” to “That hurts Mommy” to the futile “How would you like it if…”, I have not gotten through to him that it is not acceptable to emit sounds at close range that exceed 125 dB. (I’m being facetious here, but according to this Decibel Chart pain begins at 125 dB!)

What usually occurs with these repeat offenses? I try the calm and logical approach first. And second. And tenth Then it escalates. Especially when I’m exhausted and have a work deadline to adhere to. Sometimes I plead with him (mistake). By the umpteenth time, I unload. It’s not right, but it happens sometimes. Most of the time it has the same effect as any of my other tactics: nothing. Zoom. Over the head. He doesn’t listen, he doesn’t care, he is doing what he needs to do.

Lately, since the onset of precocious puberty, yelling has started to evoke a reaction of sadness and embarrassment. Of course I don’t capitalize on shaming him in any way, but something has been getting through. This is a golden window of opportunity, as his mind is temporarily freed from the pattern and he is able to hear what I am saying. After the last incident, I immediately took him somewhere quiet and talked about what just happened. I started with an apology for yelling. He retreated into, “You hate me” and “I’m stupid”. I then explained that I love him ALWAYS – no matter what – but I don’t LIKE his yelling in my ear. I calmly and appropriately told him why I didn’t like the behavior, and asked for his help in coming up with a new rule that we can all live with. We now call the living room the “quiet room”. He is welcome to make loud noises in the back half of the house, but in the quiet room we speak in normal tones.

Something happened after that conversation. Five minutes later, he had another power surge and came running down the hall screaming. He stopped in the doorway of the living room, walked up to me, and said, “Hi, Mom” in a nice, respectable tone.

What did I do? I told him I was very proud of him, did I high five, and made a big deal out of his conscious new behavior. You might think that makes me a foo-foo, new-agey, namby-pamby mom that celebrates when their child merely shows up for something. No. This is Autism. This is a connection. This is a MILESTONE.

I am not advocating that you perpetually get to the yelling stage and then backpaddle out of it like I did. But in this case I believe it shook something loose and got his attention. When I yell, I never say ugly things, by the way. It’s always matter-of-fact and focused on the behavior, but it IS yelling nonetheless.

What I learned

Instead of getting to the explosive stage, like I did, how about doing something to break the pattern? Something that would have the same affect but without the negative connotation? Try ringing a bell, using a radically different vocal tone, standing on your head, or anything unexpected. This will redirect the current behavior and get your child’s attention.

Explain briefly what the offensive behavior is (your child often has no idea what they are doing wrong), and why it is not okay. This must be spoken in clear, concise terms, not emotionally or vague in any way. Avoid our human nature to ask, “How would you like it if…”. It is common for children with Autism to lack the necessary wiring to experience empathy naturally – the question will go nowhere.

Ask for your child’s help to come up with a fun new rule that would make everyone happy. Make it clear that everyone must follow the rule. Bonus if you express a behavior that you are going to work on doing better as well!

This practice in my home has led to an increase in my son’s ability to start reading situations. Just the other day he came into the room and started bothering the dog, who immediately growled. For the first time ever he walked away and said, “Maybe he doesn’t like that.”

Yes!

What about you? What helps your child make connections? Share your thoughts by commenting below or posting on the Spirit of Autism Facebook page!

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